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My calves and ankles were thick and swollen from erythema nodosum. I was struggling with a cough and fatigue daily. We were still waiting for a formal diagnosis, and though it felt like we were getting closer, the delay was difficult to cope with. My primary care physician suggested…

The power of perseverance Marvel Studios is rereleasing “Avengers: Endgame” with new footage this Friday, June 28, in a final push to topple the box office record set by “Avatar.” Whether you are among those who consider the move to be thrilling, desperate, or a cash grab, it’s an…

This has been an interesting week. This time last year, I was released from the hospital about three days before Father’s Day. I was excited to be coming home after being hospitalized for four weeks with my third spontaneous pneumothorax. This year, I…

I wasn’t always an anxious person. Since my sarcoidosis diagnosis, however, I feel I exist in a perpetual state of anxiety. In the beginning, I am certain the anxiety was a result of the pain and fatigue. I was struggling to get answers and a formal diagnosis.

All too often in my management of sarcoidosis, I find myself falling into survival mode and living moment to moment, just trying to stave off the worst. Various factors will nudge me there. The arrival of a new symptom, worsening of an existing one, or a new obligation. Since…

I received a phone call about a week ago from one of my cousins, who is like a little brother to me. We’ve always been very close, and before my cousin’s father passed away from cancer, he asked me to “look after” my cousin, which I’ve been doing…

In the midst of a medical crisis, my long-time friend made a suggestion. She advised me to find a calming activity that would help pass the time on the road to recovery. Since she’s both a friend and a licensed clinical social worker, I trusted her input. Not surprisingly, my…

Summer is coming Summer and my sarcoidosis don’t mix well. So when Philadelphia’s temperature soared past 80 degrees May 2, I became an amateur meteorologist. If you wanted to know the weather forecast for the next hour, day, week, or 10 days out, I was your person. The House…

The immediacy of society seems to be a bit out of control. Everyone seems like they’re on the clock for one reason or another. I’ve noticed this for the past several years, and it still surprises me how much people are in such a hurry for everything. The…

I spent months trying to schedule an appointment with a pulmonologist. Finally, I found one in another state. Unfortunately, I had to pay out of pocket for the visit. At this point, however, a potential answer seemed well worth the expense. The pulmonologist listened to my breathing, took note…