I’ve been managing all right while being holed up alone since mid-March. But when I see my family and can’t hug them, I break inside. My mom worries, so twice a month I drive over and wait outside. From 6 feet or more, she mothers, telling me I should have…
Every day is a new adventure, and this pandemic certainly has been challenging. Every morning, I give thanks for seeing another day. I ask to become a better person than I was the previous day. I also give thanks for my family, and believe it or…
On April 28 of last year, I had one thing on my mind and it wasn’t my sarcoidosis. I was crammed in a movie theater for “Avengers: Endgame” learning the fate of my favorite superheroes. Filling theaters in record-breaking numbers may now be a thing of the past. But, what…
My timing has been abysmal lately. Take for instance my purchase of an all-wheel-drive car so that I could get to work in the snow. The snow never materialized (Philadelphia had a measly 0.3-inch season total), the job disappeared (thank you, COVID-19), and the car payments remain. Then…
This has been one of my most difficult weeks in many years! For four weeks I’ve self-quarantined due to the COVID-19 pandemic. Like many others, my family and I continue adjusting while evaluating everything important to our lives. Everything seemed to…
National Minority Health Month got underway in the United States on April 1 with the same theme as last year: “Active & Healthy.” Focusing the month on keeping minds and bodies active while indoors may seem like a great idea in light of a pandemic keeping many homebound. However,…
Sensory overload! I’ve already completed my 15 days of self-quarantine and I’m ready to get out. Actually, I have been out a few times just to the grocery store and then back home. My family has been quarantined with me, with the exception…
It’s difficult not to feel at least a little blue in the midst of this coronavirus pandemic. I bet even the most positive people are feeling the effects of this life upheaval. For those of us with rare diseases and compromised immune systems, it can be especially frightening. Since…
I’ve noticed that when doctors pitch something that will be good for my health, what usually follows is something I don’t like much. The reason is that achieving that goodness usually comes with some drawbacks. Taking another medication. Giving up foods I like. Sweating it out at the gym.
National Sarcoidosis Awareness Month begins on April 1 without the fanfare of years past. We can’t participate in walks. We can’t gather for events and fundraisers. And news cycles are focused on the global pandemic of a virus that attacks the lungs, not a rare disease that infiltrates…
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