I accomplished a few things that I’m proud of this past week. I finally finished one of my online nutrition courses, and I finally got my ice cream cake. The biggest and most important accomplishment is that I celebrated my 56th birthday. As the days quickly approached I…
Columns
My Fourth of July celebrations always include barbecue, but not this year. I made the leap to a vegetarian diet on May 23. I’m already seeing benefits from the move, which has given me the willpower to remain meat-free. It was tested on the most popular holiday…
With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward in traffic outside my home. Within minutes, gentle breezes carried exhaust fumes inside. I thought that by living two stories up I would escape car pollution, a common…
Father’s Day was always a good time for my family when I was growing up. My brother and I were raised by a single mother, but my maternal grandfather and uncle were role models. We come from a large family, so we always had my…
A pile of boards and bolts stood before me as the first inkling of doubt crept in. Gathering what tools I could find — a small hammer and two old screwdrivers — didn’t boost my confidence. It was seven steps to creation. What it turned out to be was a…
Recently, I thought about my past hospitalizations and how isolated I felt. I guess the events over the past three months with social distancing had me feeling isolated … again. I thought about the two months I spent in the lung center at one of our hospitals in…
I’ve avoided others throughout the pandemic because of my sarcoidosis. I had thought that if I ever ditched social distancing, it would be to embrace family, but it wasn’t. The first person to touch me since March was a mammography technologist who positioned me for a procedure that was…
An employer once asked me what was the one wish I wanted granted. Having battled sarcoidosis for years while in the workforce, the answer came easy. I asked for the option to telecommute. At the time, my wish didn’t come true. June 11 is National Work From Home…
You are where you’re supposed to be — for now. Over the past three years, I’ve been dealing with the effects of pulmonary sarcoidosis. Having suffered multiple spontaneous pneumothoraces over a two-year period, I often wonder…
I spent the first hours of April poring through television news in the U.S. Not a single mention of Sarcoidosis Awareness Month for my efforts. I did see a bus advertising it roll by in the background of a live broadcast in Philadelphia. I smiled because that’s life with a…
Recent Posts
- New report highlights unmet needs and treatment burdens in sarcoidosis
- Cardiac sarcoidosis symptoms at diagnosis help predict long-term risk
- Methotrexate is safer second-line sarcoidosis treatment than MMF
- A holiday gift guide for your loved one with sarcoidosis
- FSR gathers global leaders to drive progress in sarcoidosis research
- New genetic clues connect sarcoidosis with lung cancer risk
- When patients and caregivers swap roles, empathy usually follows
- Underdiagnosis of cardiac sarcoidosis leaves people at risk
- Repurposing drugs may improve survival for people with sarcoidosis
- Few with sarcoidosis see lung specialist within a year of diagnosis