Two years ago this week, I was in the hospital suffering from crepitus. I didn’t immediately know how serious the condition was, but it soon caused me to be intubated in the hospital’s ICU. The same hospital…
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When I was fired years ago while battling sarcoidosis on unpaid sick leave, I was blindsided. The termination letter reached me at the end of the month, at the same time that my health benefits were stopped. I ended up in a similar situation as the estimated 5.4 million workers…
This week, my wife and I will be celebrating our 22nd wedding anniversary. As only a wife can document such an occasion, we’ve been together for 35 years total. Our son asked me how it feels. I told him I’ll let him know when the…
Sarcoidosis involves the lungs in most cases, so you may head to a pulmonologist and consider your care handled. I did, but it was only the beginning of sitting on the crinkly, white paper of examining room tables looking for answers. The first lesson I learned was that relying on…
A few months ago I had a conversation with someone who told me he was recently released from the hospital after having triple bypass surgery. I mentioned that my mom had a heart valve replacement a few years before she passed. I also told him about my…
With 92 degrees forecast, I headed out for a walk Thursday morning to beat the heat. Within minutes, I had to quit because of a sarcoidosis-related condition that required stubbornness to get diagnosed. Trudging home, fearing I would faint, I recalled the physician who told me, “Not everything is sarcoidosis,”…
I accomplished a few things that I’m proud of this past week. I finally finished one of my online nutrition courses, and I finally got my ice cream cake. The biggest and most important accomplishment is that I celebrated my 56th birthday. As the days quickly approached I…
My Fourth of July celebrations always include barbecue, but not this year. I made the leap to a vegetarian diet on May 23. I’m already seeing benefits from the move, which has given me the willpower to remain meat-free. It was tested on the most popular holiday…
With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward in traffic outside my home. Within minutes, gentle breezes carried exhaust fumes inside. I thought that by living two stories up I would escape car pollution, a common…
Father’s Day was always a good time for my family when I was growing up. My brother and I were raised by a single mother, but my maternal grandfather and uncle were role models. We come from a large family, so we always had my…
Recent Posts
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- FDA, developer align on protocols for trial of pulmonary sarcoidosis drug
- Large study ties sarcoidosis to risk of permanent liver scarring
- Reflecting with gratitude on what sarcoidosis has brought to my life
- Lingering heart inflammation tied to cardiac sarcoidosis relapse risk
- Study identifies three genes that may influence sarcoidosis risk
- How music can help us process chronic pain, and even provide some relief
- Philadelphia summit to bring together sarcoidosis patients, experts
- Immune changes may help reveal disease activity in cardiac sarcoidosis
- In an inaccessible world, sometimes you can’t make lemonade