Float Like a Buttahfly – a Column by Kerry Wong

Last month, I had two intravenous immunoglobulin (IVIG) infusions and three other medical appointments. This month, I have “only” one infusion and two appointments because I’ll be away for a few weeks. When I come back — another short month — I’ll have two infusions and five appointments. And so…

At the start of a virtual meeting the other day, the facilitator began the discussion by asking all of us, “What are you grateful for?” Answers varied, but most included family, community, and health. I agree with those first two, but I have a harder time saying “thank you” to…

Since the deaths of Dolly Parton and Tim Curry last week, social media has been flooded with moving tributes. “Jolene,” “9 to 5,” and “The Rocky Horror Picture Show” soundtrack stay with us for their cultural and emotional impact. Due to the music, lyrics, and nostalgia, classics like these endure…

When life gives you lemons, you make lemonade, or so they say. That metaphor doesn’t work quite as well for me, though, because I don’t like lemonade. Still, I agree with the sentiment and try to make the best of things whenever I can. But sometimes you just can’t stomach…

The other day, I read a column from a colleague about how coffee can have a positive effect on liver disease. It caught my attention immediately, as I was actually drinking a cup and waiting on a call from my hepatologist to discuss the results of my recent biopsy.

Like most girls growing up in the 1980s, I had a massive crush on Michael J. Fox. I watched all of his shows and movies (many times) and hung his picture on my bedroom wall. When he started writing books, I had to read those, too. These days, I admire…

My mom visited me at the hospital during my latest infusion and, unsurprisingly, did not come empty-handed. She brought lunch and a few tchotchkes she’d picked up recently. Among them was a decal that read, “And one day, the girl with the books became the woman writing them.” It made…

I am sick of being sick. Tired of being tired. Sick and tired of being sick and tired. That’s a fairly common sentiment among people living with chronic illness, since “chronic” means it never seems to go away. I’ve been living with sarcoidosis, rheumatoid arthritis, fibromyalgia, and more for…

For the past few days, or weeks — or is it months? — it feels like I’ve been hurting more and more. It’s easy to lose track of time when one day lost to pain blends into the next. It’s difficult for me to explain, so I can only imagine…

When I was diagnosed with sarcoidosis, I immersed myself in the community and made April — which is Sarcoidosis Awareness Month — my busiest time of the year. I dressed, accessorized, and dyed my hair purple, the official color of sarcoidosis awareness. I created walkathons and other awareness events,…