Invisible Chaos - a Column by Athena Merritt

lung care, insecurities, employment, managing a disease

Athena, a former journalist and Pennsylvania native, was diagnosed with sarcoidosis in 2002. She’s admittedly addicted to books, Marvel, and football. She tackles life with humor, passion and curiosity, and hopes to reach others through her writing.

Educating Others About Sarcoidosis

Sarcoidosis 101 Have you ever tried to explain sarcoidosis to someone? First, you have to phonetically walk them through the funny-sounding pronunciation. If you still have their attention after that, it’s usually gone by the time you hit the term “granuloma.” After being shellshocked by a sarcoidosis diagnosis,…

SarcWarrior: My Hidden Superpowers

As a Marvel fan, this week’s long-awaited premiere of “Avengers: Endgame” has me thinking about the sarcoidosis community’s hidden superpowers. They aren’t flashy. We can’t fly. We can’t shoot webs from our wrists and swing through neighborhoods. And we can’t transform our bodies into a hulking green beast — though…

Stumbling into the Unknown

I was thrilled to find out the television network NBC will be airing a sarcoidosis PSA this month to raise awareness about the disease, which so many fail to recognize at the onset of symptoms. I did. Night sweats — which had me waking as drenched as if I…