News Gram-negative Bacteria Increase ICU Admission, Deaths in Sarcoidosis, ILDs

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News Cutaneous Sarcoidosis Linked with Recurrence of Breast Cancer in Case Study

News Phase 1/2 Trial to Test aTyr Pharma’s ATYR1923 in Pulmonary Sarcoidosis Patients

News Sarcoidosis Patients More Likely to Develop Heart Rhythm Disorders, Large Retrospective Study Finds

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News Rare Case of Sternoclavicular Joint Arthritis in Sarcoidosis Patient Reported

News Multiple Biomarkers Could Identify, Characterize, and Predict Prognosis of Cardiac Sarcoidosis, Study Says

News IL-33 Seen to Restore Balance in Immune Response of Mice with Pulmonary Sarcoidosis

News Sarcoidosis Cases Increase in Korea; Middle-Aged Women at Higher Risk, Report Shows

News Serum Levels of 4 Proteins Enable Monitoring of Sarcoidosis Activity, Study Reports

News Daytime Sleepiness More Frequent in Sarcoidosis Patients than in General Population, Study Finds

News Older Patients Show Fewer Symptoms of Ocular Sarcoidosis, Complicating Diagnosis, Study Shows

News Elderly-onset Sarcoidosis Has Distinct Disease Features from Youth-onset, Study Finds

News Blood Levels of 2 microRNAs May Help Diagnose Cardiac Sarcoidosis, Study Suggests

News, Recently Published Sarcoidosis in Sarcoma Patients May Be More Common Than Realized, Study Finds

News Rare Lung Disease Can Develop in Sarcoidosis Patients, Case Study Reports

News Neurosarcoidosis Can Be Misdiagnosed as Meningitis, Case Study Reports

News Sarcoidosis Risk Higher in Families with Disease History, Study Reports

News Apple’s ResearchKit App for Sarcoidosis Patients Now Available on Android

News NOD2 Mutation, Combined with Other Variants, Influences Familial Sarcoidosis Progression, Study Finds

News Sarcoidosis in Lungs, Skin, Eyes Linked to Age and Gender in Large Japanese Survey

News Short-term Air Pollution Exposure Can Increase Severity of Fibrotic Sarcoidosis Respiratory Symptoms, Small Study Finds

News Case Report Describes Rare Coexistence of Sarcoidosis and Tuberculosis in Patient with Severe PAH

News Foundation for Sarcoidosis Research Launches Patient Ambassador Program

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News Endocan Levels Can Predict Cardiovascular Involvement in Patients with Sarcoidosis

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Single Mindfulness Training Session Shows Benefits for Sarcoidosis Patients

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News Newly Established Registry Sheds Light on Treatment, Features of Sarcoidosis-linked PH

News Younger Sarcoidosis Patients Given Double Lung Transplants Show Better Survival Rates, Study Finds

News High Blood Calcium Levels, Scarring on Scalp, Kidney Failure Rare in Sarcoidosis Cases, Report Says

News High Antibody Levels in Sarcoidosis Aren’t Good Predictors of Disease Severity, Study Finds

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

News Heart Transplant a Viable Option for Cardiac Sarcoidosis Patients, Study Finds

News Exposure to Chromium May Cause Subcutaneous Sarcoidosis, Case Report Suggests

News Sarcoidosis Research Foundation Awards Travel Grants to Top Investigators Presenting at Meeting

News April is Time to Take the #SarcoidStories Challenge

News NIH Agency Pioneers Collaborative Research into Rare Diseases

News 4th Annual Sarcoidosis Campaign Aims to Raise Awareness, Educate Patients

News Migraines Are Common in Sarcoidosis Patients, Study Finds

News Wearable Defibrillator Can Prevent Sudden Death in Cardiac Sarcoidosis Patients, Study Shows

News Bardoxolone Improved Sarcoidosis Patients’ Exercise Ability in Phase 2 Trial

News Link Between Sarcoidosis and Lung Microbes to Be Studied in NIH-Funded Project

News Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event

News Common Skin Bacteria May Trigger Granuloma Formation in Sarcoidosis, Study Suggests

News ‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease Day Event

News Genetic Mutations Can Be Risk Factors for Pediatric Sarcoidosis, Study Finds

News Rare Disease Groups Welcome FDA’s Embrace of ‘Real World’ Data in Clinical Trials

News US Lawmakers Urge Bipartisan Support for Rare Disease Research, Patients’ Needs

News Sarcoidosis Hospitalization Increases; In-hospital Mortality Declines, Database Study Shows

News Experts Review Possible Causes and Treatments of Pulmonary Sarcoidosis

News Retrophin, Horizon Donate $3M Each to Rare Disease Institute at Children’s National

News Isolated Cardiac Sarcoidosis May Be Rarer than Previously Suggested, Small Study Says

News BioNews to Cover 3 Rare Disease Day Events, Including NIH Conference

News Patient Advocacy Groups Worldwide Plan Events to Mark Rare Disease Day, Feb. 28

News Case Report Links MS Therapy Daclizumab to Pulmonary Sarcoidosis

News Researchers Identify Better Diagnostic Test for Sarcoidosis-associated Uveitis

News Rare Disease Groups, Patients Differ on ‘Right to Try’ Bill Before US Congress

News Philadelphia’s Korman Respiratory Institute Names Jesse Román New CEO

News Large-Scale Study Reinforces the Importance of Detecting, Preventing Heart Disease in Sarcoidosis

News Mallinckrodt Starts Phase 4 Trial for Acthar Gel to Treat Pulmonary Sarcoidosis

News NORD Fundraiser Sets 7,000-Mile ‘Bike, Run or Walk’ Goal for 7,000 Rare Diseases

News Extrathoracic Disease More Prevalent in WTC Firefighters with Sarcoidosis Post-9/11, Study Finds

News UK University Researchers Awarded Grant to Seek Cause of Sarcoidosis

News Case Report Describes Rare Sarcoidosis Patient with Hypercalcemia, Pancreatitis

News First Total-body PET Scanner Promises to Increase Sensitivity of Diagnosis and Treatment of Sarcoidosis, Other Diseases

News WASOG Designates Temple Lung Center As Official Sarcoidosis Clinic

News Male Sarcoidosis Patients, Those on Immunosuppressive Agents Face Higher Risk for Severe Infections

News Chronic Severe Pain Defines Lives of Sarcoidosis Patients, Survey Finds

News Higher Numbers of 2 Bacteria Species Found in Sarcoidosis Patients, Study Finds

News Top 20% of Most Costly Sarcoidosis Patients Account for 72% of US Spending on the Disease

News Cardiac Magnetic Resonance Can Improve Cardiac Sarcoidosis Diagnosis, Prognosis, Study Finds

News Case Report Suggests Radiotherapy as Treatment for Patients with Bone Involvement Sarcoidosis

News Remicade Treatment Appears to Benefit Patients with Neurosarcoidosis, Study Finds

News Phase 1 Trial of New Therapy Begins for Interstitial Lung Diseases Such as Sarcoidosis

News Oklahoma Research Foundation Seeking Volunteers for Sarcoidosis Research Clinic Project

News Rare Disease Patient Groups Unite to Preserve Orphan Drug Tax Credit in US

News Acne-Causing Bacteria May Also Lead to Ocular Sarcoidosis, Small Study Suggests

News One Patient, Two Distinct Diseases: Sarcoidosis and Gouty Arthritis

News Revatio Fails to Prevent PAH Progression in Sarcoidosis Patient, Case Report Finds

News PAH Drugs of Limited Benefit in Sarcoidosis-linked Pulmonary Hypertension, Study Finds

News Children’s National, NORD Partner to Create Rare Disease ‘Centers of Excellence’

News #NORDsummit – Alternatives to Large Placebo Trials, Grant Awards Among Ways FDA Supporting Rare Diseases, Chief Says

News Rare Case of Pancreatic, Pulmonary, and Bronchial Sarcoidosis Reported

News #NORDsummit – Despite Criticism, Orphan Drug Act Is Working to Advance Needed Treatments, FDA Says

News FDA Awards $300,000 Grant to University of Iowa Researcher for Sarcoidosis Study

News TNF Antagonists Are Effective at Treating Sarcoidosis, but Adverse Events Are a Concern

News Cardiac Sarcoidosis Cases Doubled in US from 2005-2011, Study Finds

News Mayo Clinic Population-based Study Characterizes Hepatic Sarcoidosis

News Coronary Blood Flow Is Reduced in Patients with Sarcoidosis, Study Finds

News Breast Cancer Patients May Be at Risk for Sarcoidosis, Case Studies Suggest

News Clinical Trial to Study Benefits of Nicotine Patches in Sarcoidosis Patients

News Silica Exposure Increases Risk of Sarcoidosis, Swedish Study Shows

News Researchers Propose Full-Body Scans for Cardiac Sarcoidosis Patients to Identify Secondary Disease Sites

News Sarcoidosis Patients Face Higher Risk of Venous Thromboembolism, Minnesota Study Finds

News Aging Population May Explain Why Pulmonary Sarcoidosis Resolution Rates Are Dropping in Japan

News Sarcoidosis Patients Incur High Medical Costs for Commercial Insurance Payers, Study Says