Updates

May 26, 2020May 22, 2020
My Love Affair with Meat Hits a Rocky Patch

Sometimes in relationships flaws become too glaring to ignore, which either leads to compromise or goodbye. That is now the case in my long ... Read more
May 25, 2020May 25, 2020
Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

European authorities must step up efforts to screen babies for a multitude of genetic disorders, a panel of experts suggested during a May 14-15 ... Read more
May 22, 2020May 20, 2020
Living with Sarcoidosis Can Change Your Thinking for the Better

I once heard an old man say that “a changed mind is a dangerous thing.” In the summer of 2017, I spent two months ... Read more
May 20, 2020May 20, 2020
Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Eurordis, a Paris-based coalition of national rare disease associations across Europe, hosted its first all-virtual conference, bringing some 1,500 delegates from 57 countries together ... Read more
May 19, 2020May 15, 2020
The Season of Sneezing Is Upon Us

Runny nose, sneezing, coughing, and itchy, watery eyes. Getting a breath of fresh air ain’t what it used to be. Spring allergy season is ... Read more

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October 3, 2016October 3, 2016

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

News

Elevated levels of calcium in blood and urine can be associated with the development of bone marrow sarcoidosis, according to a report published in the journal Biomarker Research. The study, “Hypercalcemia Associated With Isolated Bone Marrow Sarcoidosis In A ... Read more

Updates

My Love Affair with Meat Hits a Rocky Patch

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Living with Sarcoidosis Can Change Your Thinking for the Better

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

The Season of Sneezing Is Upon Us

Sarcoidosis Does Not Increase Risk of Worse COVID-19 Outcomes, Early Survey Data Show

Lingering Questions About Lyme Disease

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

I’m Quarantine Ready, Thanks to Sarcoidosis

Chitotriosidase Enzyme May Be Indicator of Sarcoidosis Activity, Severity

We’re Stronger Than We Think

Subscribe to our mailing list

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

The Heroes of the Pandemic Era

American Thoracic Society Publishes Guidelines to Help Clinicians Diagnose Sarcoidosis

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Less Streaming and More Books Is My Recipe for Better Health

Blood Levels of Anti-Inflammatory Protein High in Patients, Study Finds

Coping with Sarcoidosis, COVID-19, and the Loss of a Partner

National Minority Health Month Misses the Mark in 2020

NIH $1.98M Grant to Help Develop Easier Way of Diagnosing Sarcoidosis

Are Sarcoidosis and COVID-19 Stressing You Out?

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Getting Creative Despite Feeling Blue

Laughter Is the Medicine You Won’t Mind Taking

Joint Campaign to Raise Awareness About Sarcoidosis and COVID-19

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Pandemic Likely to Delay Results of Trial into Pulmonary Sarcoidosis Treatment

Letting Go of ‘Should’ with Sarcoidosis

Ideas for Sarcoidosis Patients Who Are Self-isolating and Bored

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

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My Love Affair with Meat Hits a Rocky Patch

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Living with Sarcoidosis Can Change Your Thinking for the Better

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

The Season of Sneezing Is Upon Us

Sarcoidosis Does Not Increase Risk of Worse COVID-19 Outcomes, Early Survey Data Show

Lingering Questions About Lyme Disease

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

I’m Quarantine Ready, Thanks to Sarcoidosis

Chitotriosidase Enzyme May Be Indicator of Sarcoidosis Activity, Severity

We’re Stronger Than We Think

Subscribe to our mailing list

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

The Heroes of the Pandemic Era

American Thoracic Society Publishes Guidelines to Help Clinicians Diagnose Sarcoidosis

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Less Streaming and More Books Is My Recipe for Better Health

Blood Levels of Anti-Inflammatory Protein High in Patients, Study Finds

Coping with Sarcoidosis, COVID-19, and the Loss of a Partner

National Minority Health Month Misses the Mark in 2020

NIH $1.98M Grant to Help Develop Easier Way of Diagnosing Sarcoidosis

Are Sarcoidosis and COVID-19 Stressing You Out?

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Getting Creative Despite Feeling Blue

Laughter Is the Medicine You Won’t Mind Taking

Joint Campaign to Raise Awareness About Sarcoidosis and COVID-19

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Changing Tactics for National Sarcoidosis Awareness Month

Pandemic Likely to Delay Results of Trial into Pulmonary Sarcoidosis Treatment

Social Distancing Could Be Good for More than Only Physical Health

Letting Go of ‘Should’ with Sarcoidosis

Ideas for Sarcoidosis Patients Who Are Self-isolating and Bored

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

Pin It on Pinterest