May 22, 2018May 22, 2018
Single Mindfulness Training Session Shows Benefits for Sarcoidosis Patients

Mindfulness exercises can help decrease the physical and psychological symptoms of sarcoidosis and improve well-being and motivation in patients ... Read more
May 17, 2018May 17, 2018
‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act ... Read more
May 16, 2018May 16, 2018
#ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live ... Read more
May 15, 2018May 15, 2018
Newly Established Registry Sheds Light on Treatment, Features of Sarcoidosis-linked PH

A newly established registry for patients with sarcoidosis associated with pulmonary hypertension sheds light on characteristics and treatment patterns ... Read more
May 10, 2018May 10, 2018
Younger Sarcoidosis Patients Given Double Lung Transplants Show Better Survival Rates, Study Finds

Sarcoidosis patients given double lung transplants, especially at younger ages, show superior survival rates to those with other serious ... Read more
May 8, 2018May 8, 2018
High Blood Calcium Levels, Scarring on Scalp, Kidney Failure Rare in Sarcoidosis Cases, Report Says

In rare cases of sarcoidosis, patients may have high blood calcium levels (hypercalcemia), scarring on the scalp, and kidney failure, ... Read more
May 3, 2018May 3, 2018
High Antibody Levels in Sarcoidosis Aren’t Good Predictors of Disease Severity, Study Finds

A small study assessing antibody levels in sarcoidosis patients at the time of their diagnosis found that elevated levels did not ... Read more
May 2, 2018May 2, 2018
#ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for ... Read more
April 26, 2018April 26, 2018
Heart Transplant a Viable Option for Cardiac Sarcoidosis Patients, Study Finds

Patients with cardiac sarcoidosis have similar post-heart transplant features and survival rates as patients without the disease, a new ... Read more
April 19, 2018April 19, 2018
Exposure to Chromium May Cause Subcutaneous Sarcoidosis, Case Report Suggests

Exposure to chemical substances used in leather tanning may have been the cause of a rare case of subcutaneous ... Read more
April 17, 2018April 17, 2018
Sarcoidosis Research Foundation Awards Travel Grants to Top Investigators Presenting at Meeting

The Foundation for Sarcoidosis Research (FSR) has invested $1 million in its new Clinical and Research Fellowship Program. It also ... Read more
April 13, 2018April 13, 2018
April is Time to Take the #SarcoidStories Challenge

The Foundation for Sarcoidosis Research is calling for everyone to participate this month of April in a campaign to ... Read more

May 22, 2018May 22, 2018

Single Mindfulness Training Session Shows Benefits for Sarcoidosis Patients

Mindfulness exercises can help decrease the physical and psychological symptoms of sarcoidosis and improve well-being and motivation in patients and caregivers, a small study found. Sarcoidosis patients, including some ... Read more

May 17, 2018May 17, 2018

‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act and NORD’s founding at a dinner tonight in Washington, D.C. ... Read more

May 16, 2018May 16, 2018

#ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in its 28 member countries, officials meeting last week in ... Read more

May 15, 2018May 15, 2018

Newly Established Registry Sheds Light on Treatment, Features of Sarcoidosis-linked PH

A newly established registry for patients with sarcoidosis associated with pulmonary hypertension sheds light on characteristics and treatment patterns that can be used for future randomized clinical trials, according ... Read more

May 10, 2018May 10, 2018

Younger Sarcoidosis Patients Given Double Lung Transplants Show Better Survival Rates, Study Finds

Sarcoidosis patients given double lung transplants, especially at younger ages, show superior survival rates to those with other serious lung diseases, researchers report, suggesting these considerations guide the procedure. ... Read more

May 8, 2018May 8, 2018

High Blood Calcium Levels, Scarring on Scalp, Kidney Failure Rare in Sarcoidosis Cases, Report Says

In rare cases of sarcoidosis, patients may have high blood calcium levels (hypercalcemia), scarring on the scalp, and kidney failure, according to a new report. The case report, titled “Symptomatic ... Read more

May 3, 2018May 3, 2018

High Antibody Levels in Sarcoidosis Aren’t Good Predictors of Disease Severity, Study Finds

A small study assessing antibody levels in sarcoidosis patients at the time of their diagnosis found that elevated levels did not predict a more severe disease progression. But French researchers found ... Read more

May 2, 2018May 2, 2018

#ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for ECRD 2018, the 9th European Conference on Rare Diseases and Orphan ... Read more

April 26, 2018April 26, 2018

Heart Transplant a Viable Option for Cardiac Sarcoidosis Patients, Study Finds

Patients with cardiac sarcoidosis have similar post-heart transplant features and survival rates as patients without the disease, a new study found. The data indicates that heart transplant is a ... Read more

April 19, 2018April 19, 2018

Exposure to Chromium May Cause Subcutaneous Sarcoidosis, Case Report Suggests

Exposure to chemical substances used in leather tanning may have been the cause of a rare case of subcutaneous (under-the-skin) sarcoidosis around a man’s left eye and mouth, a ... Read more

April 17, 2018April 17, 2018

Sarcoidosis Research Foundation Awards Travel Grants to Top Investigators Presenting at Meeting

The Foundation for Sarcoidosis Research (FSR) has invested $1 million in its new Clinical and Research Fellowship Program. It also gave travel awards to the first authors of the top ... Read more

April 13, 2018April 13, 2018

April is Time to Take the #SarcoidStories Challenge

The Foundation for Sarcoidosis Research is calling for everyone to participate this month of April in a campaign to celebrate those living with sarcoidosis. This year’s campaign, #SarcoidStories, is ... Read more