Updates

December 9, 2019December 9, 2019
Subgroup of Active T-cells Linked to Worse Disease in Sarcoidosis, Study Reports

The lungs of patients with sarcoidosis are burdened with a more active subset of immune T-cells, called mucosal-associated invariant T (MAIT) cells, a study ... Read more
December 6, 2019December 6, 2019
HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access ... Read more
December 6, 2019December 5, 2019
Small Dietary Changes Can Make a Big Difference

A few months ago, I enrolled in two online courses: a naturopath nutritional course and a master herbalist course. I hoped to gain knowledge ... Read more
December 4, 2019December 2, 2019
Bouncing Back Through Creativity

It has been over a month since I first came down with the virus. I slept through the first week and a half, but ... Read more
December 3, 2019December 3, 2019
Pacing Myself During the Holiday Season

I used to be a notoriously late holiday shopper, scrambling in stores on Christmas Eve to complete my gift list to the amusement of ... Read more

News

Certain Immune Cells May Drive Sarcoidosis by Producing Inflammatory Agents, Study Suggests
December 2, 2019December 2, 2019
Intermediate monocytes, a type of immune cell, may contribute to the development and progression ...
Columns, Life Altered - a Column by Kate Spencer

Feeling Thankful for the Blessings in My Life
November 27, 2019November 25, 2019
The Thanksgiving holiday is fast approaching here in the United States. It’s a time ...
Columns, Invisible Chaos - a Column by Athena Merritt

How Not to Travel with Sarcoidosis
November 26, 2019November 22, 2019
More than 55 million people plan to travel 50 miles or more for Thanksgiving ...
News

Acthar Gel May Improve Sarcoidosis Symptoms, Real-world Study Shows
November 25, 2019November 25, 2019
Acthar Gel (repository corticotropin injection, or RCI) can improve sarcoidosis symptoms, a real-world study ...
Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

Sometimes You Have to Compare Risks and Rewards
November 22, 2019November 20, 2019
My daughter celebrated her 20th birthday last week. She kept saying she wanted to take ...
Columns, Life Altered - a Column by Kate Spencer

I Have a New Holiday Tradition Because of Sarcoidosis
November 20, 2019November 18, 2019
Before my diagnosis, I thought of myself as a traditionalist, at least when it ...

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I Went One Step Too Far in Pursuit of My Fitness Goals
November 19, 2019November 15, 2019
I’m often my own worst enemy. Last year, I decided to add some variety ...
UCLA Launches Fundraising Effort for New Research Center for Sarcoidosis, Other Advanced Lung Diseases
November 18, 2019November 18, 2019
The University of California, Los Angeles (UCLA) is launching a fundraising initiative to help ...
Rare Disease Film Festival Highlights Patient and Researcher Unity
November 15, 2019November 16, 2019
Obstacles Are Teachable Lessons for Personal Growth
November 15, 2019November 13, 2019
When Should I Tell Others About Sarcoidosis?
November 13, 2019November 12, 2019
Big Dreams Can Help Us Overcome Health Setbacks
November 12, 2019November 8, 2019

sIL-2R More Sensitive than ACE at Identifying Possible Cases of Sarcoidosis, Study Finds
November 11, 2019November 11, 2019
The soluble interleukin 2 receptor (sIL-2R) is more sensitive and specific than the angiotensin-converting ...
When Life Interrupts, Get out of Your Own Way
November 8, 2019November 6, 2019
Loyal Pets Help Me Manage Sarcoidosis
November 6, 2019November 1, 2019
Tips to Cut Prescription Costs at Year’s End
November 5, 2019November 1, 2019

Transbronchial Lung Cryobiopsy Helps Provide Definitive Diagnose of Sarcoidosis, Study Suggests
November 4, 2019November 4, 2019
Transbronchial lung cryobiopsy — a relatively new method of collecting lung tissue for analysis ...
Remaining Humble During a Health Crisis
November 1, 2019October 29, 2019
A Minor Setback in the Form of a Virus
October 30, 2019October 31, 2019

Columns, Invisible Chaos - a Column by Athena Merritt

Surviving Sarcoidosis Battles and Forging Ahead Without Answers
October 29, 2019October 28, 2019
Getting out of bed in the mornings has become an adventure. Even if I ...
News

Unusual Case of Tears in Heart Blood Vessels Found in Cardiac Sarcoidosis Patient
October 28, 2019October 28, 2019
Tears in blood vessels of the heart can occur in people with cardiac sarcoidosis, ...
Columns, Life Altered - a Column by Kate Spencer

I Wonder Which Came First: Stress or Sarcoidosis?
October 23, 2019October 21, 2019
I eat well, get adequate sleep, and lead a balanced lifestyle overall. My routine ...
Columns, Invisible Chaos - a Column by Athena Merritt

Healthy Eating in October Takes Willpower
October 22, 2019October 18, 2019
Healthy eating is a year-round struggle for me, but the month of October is ...
News

Depression and Anxiety May Worsen Quality of Life, Lung Function of Patients with Pulmonary Sarcoidosis, Study Says
October 21, 2019October 21, 2019
Depression and anxiety may worsen the quality of life and lung function of patients ...
Columns, No Tears for Sarcoidosis - a Column by Charlton Harris

I’m Glad I Made a Difference in My Friend’s Life
October 18, 2019October 17, 2019
I haven’t felt like myself the past couple of days. One night, I drifted off ...
Columns, Life Altered - a Column by Kate Spencer

Filling the Work Void Created by My Sarcoidosis Diagnosis
October 16, 2019October 14, 2019
I miss many things about life before my sarcoidosis diagnosis. On that list are ...
Columns, Invisible Chaos - a Column by Athena Merritt

Are You Missing Out on Ways to Cut Healthcare Costs?
October 15, 2019October 11, 2019
At this time of year, a window opens for millions of people to find ...
News

FDA Grants Breakthrough Therapy Status to Ofev for Sarcoidosis, Other ILDs
October 14, 2019October 14, 2019
The U.S. Food and Drug Administration (FDA) has granted the designation of breakthrough therapy ...

October 3, 2016October 3, 2016

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

News

Elevated levels of calcium in blood and urine can be associated with the development of bone marrow sarcoidosis, according to a report published in the journal Biomarker Research. The study, “Hypercalcemia Associated With Isolated Bone Marrow Sarcoidosis In A ... Read more

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