Updates

March 4, 2021March 4, 2021
Xentria Seeks to Begin Clinical Trial of XTMAB-16

Xentria is seeking regulatory approval to begin clinical trials to test XTMAB-16, its investigational TNF-alpha inhibitor for the treatment of sarcoidosis. Xentria submitted the request — in ... Read more
March 2, 2021February 26, 2021
The Early Bird Wins (I Hope) When It Comes to Daylight Saving Time

I view my biological clock as a stubborn, old mule. She dictates her pace, and getting her to change is hard. Real hard. She wants ... Read more
February 26, 2021February 26, 2021
Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Diagnosed with sickle cell disease as a 6-month-old, Tristan Lee has faced a lot of challenges over his 37 years of life. But from a ... Read more
February 25, 2021February 25, 2021
Adults Sought for Sarcoidosis Inflammation Study

The Foundation for Sarcoidosis Research is urging adults with sarcoidosis to participate in a new study that will investigate how lymphocytes — one of the ... Read more
February 23, 2021February 23, 2021
Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1, will feature panel discussions, patient stories, research ... Read more

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October 3, 2016October 3, 2016

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

News

Elevated levels of calcium in blood and urine can be associated with the development of bone marrow sarcoidosis, according to a report published in the journal Biomarker Research. The study, “Hypercalcemia Associated With Isolated Bone Marrow Sarcoidosis In A Patient ... Read more

Updates

Xentria Seeks to Begin Clinical Trial of XTMAB-16

The Early Bird Wins (I Hope) When It Comes to Daylight Saving Time

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Adults Sought for Sarcoidosis Inflammation Study

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Help Tackle Sarcoidosis by Speaking Up on Rare Disease Day

Protalix, SarcoMed Partner to Advance PRX-110 for Pulmonary Sarcoidosis

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Remission Doesn’t Always Mean the End of Symptoms

FDA Grants Priority Review to Esbriet for Unclassifiable Interstitial Lung Disease

Pandemic Won’t Stop Rare Disease Day on Feb. 28

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Victories Are Sweeter When You Have to Work Hard for Them

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Inflammation Limited to Front of Eye Can Aid Recovery in Ocular Sarcoidosis

Why You Need to Know About Cardiac Sarcoidosis Screening

We Learn About Ourselves When Learning About Others

Relief Will Acquire Rights to Potential Sarcoidosis Therapy RLF-100 in Deal

COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say

Unlike Before, I Now Take the Time to Enjoy Life

NORD’s Caregiver Respite Program Continues Through Pandemic

What I Want My Loved Ones to Understand About Sarcoidosis

3 Reasons to Find a New Doctor

‘Endureth All Things,’ as the Outcome May Surprise You

Include Pulmonary Sarcoidosis in Chest Pain Diagnosis, Case Report Advises

NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum

Weighing the Risks and Benefits of COVID-19 Vaccines

Bird-related Lung Disease Seen to Affect Japanese Man’s Sarcoidosis

Relieve Stress With This Alternative to New Year’s Resolutions

Tackle This Year-end Health Checklist Before 2021 Arrives

Cancer Patients With Sarcoidosis-like Granulomas More Likely to Survive

Take Control of Your Health by Controlling Yourself

TNF-alpha Inhibitor XTMAB-16 Granted FDA’s Orphan Drug Designation

Why Medical Appointments Should Be a Priority, Even Now

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated