Updates

November 13, 2018November 13, 2018
Rituxan Successfully Treated Refractory Neurosarcoidosis, Case Report States

Treatment with Rituxan (rituximab) provided marked disease remission and was well-tolerated by three patients with refractory neurosarcoidosis, according to a new case report. The ... Read more
November 6, 2018November 6, 2018
Benefits of Adalimumab (Humira) in Verrucous Sarcoidosis Cited in Case Report

Adalimumab — marketed by (Abbvie) as Humira — can help treat patients with verrucous sarcoidosis — a rare type of cutaneous (skin) sarcoidosis — ... Read more
October 30, 2018October 30, 2018
#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range of hot-button issues, from ... Read more
October 25, 2018October 25, 2018
Burden of Cardiac Arrhythmias Increasing in Sarcoidosis Patients, US Study Reports

Cardiac arrhythmias are increasing among sarcoidosis patients, and they are linked with higher hospital admission and mortality rates, a U.S. patient population study finds. ... Read more
October 23, 2018October 23, 2018
MRI Screenings Show Spinal Sarcoidois More Common Than Previously Thought, Study Reports

Highly sensitive magnetic resonance imaging (MRI) of the spinal cord shows that spine involvement is prevalent in sarcoidosis patients, mostly affecting the cervical region, ... Read more

News

Gram-negative Bacteria Increase ICU Admission, Deaths in Sarcoidosis, ILDs
October 18, 2018October 18, 2018
The presence of certain types of bacteria, specifically gram-negative bacteria other than Pseudomonas aeruginosa, ...
News

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
October 9, 2018October 9, 2018
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced ...
News

Cutaneous Sarcoidosis Linked with Recurrence of Breast Cancer in Case Study
October 4, 2018October 4, 2018
A 49-year-old woman in Australia was simultaneously diagnosed with a rare case of cutaneous ...
News

Phase 1/2 Trial to Test aTyr Pharma’s ATYR1923 in Pulmonary Sarcoidosis Patients
October 2, 2018October 2, 2018
aTyr Pharma, which developing therapies to modulate immune pathways involved in lung diseases, has ...
News

Sarcoidosis Patients More Likely to Develop Heart Rhythm Disorders, Large Retrospective Study Finds
September 28, 2018September 28, 2018
Patients with sarcoidosis are more likely to have heart rhythm disorders, specifically ventricular tachycardia, ...
News

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
September 24, 2018September 24, 2018
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to ...

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Rare Case of Sternoclavicular Joint Arthritis in Sarcoidosis Patient Reported
September 20, 2018September 20, 2018
A new case report describes a patient with arthritis of the sternoclavicular joint (SC joint, ...
Multiple Biomarkers Could Identify, Characterize, and Predict Prognosis of Cardiac Sarcoidosis, Study Says
September 18, 2018September 18, 2018
Measuring the serum levels of four specific biomarkers could help doctors detect cardiac sarcoidosis, ...
IL-33 Seen to Restore Balance in Immune Response of Mice with Pulmonary Sarcoidosis
September 13, 2018September 13, 2018
Sarcoidosis Cases Increase in Korea; Middle-Aged Women at Higher Risk, Report Shows
September 11, 2018September 11, 2018
Serum Levels of 4 Proteins Enable Monitoring of Sarcoidosis Activity, Study Reports
September 6, 2018September 6, 2018
Daytime Sleepiness More Frequent in Sarcoidosis Patients than in General Population, Study Finds
September 4, 2018September 4, 2018

Older Patients Show Fewer Symptoms of Ocular Sarcoidosis, Complicating Diagnosis, Study Shows
August 30, 2018August 30, 2018
Older patients tend to show fewer symptoms and abnormal lab results typically associated with ...
Elderly-onset Sarcoidosis Has Distinct Disease Features from Youth-onset, Study Finds
August 21, 2018August 21, 2018
Blood Levels of 2 microRNAs May Help Diagnose Cardiac Sarcoidosis, Study Suggests
August 7, 2018August 7, 2018
Sarcoidosis in Sarcoma Patients May Be More Common Than Realized, Study Finds
August 2, 2018August 5, 2018

Rare Lung Disease Can Develop in Sarcoidosis Patients, Case Study Reports
July 31, 2018July 31, 2018
Cryptogenic organizing pneumonia, a rare lung disease, can develop in patients with sarcoidosis, according to ...
Neurosarcoidosis Can Be Misdiagnosed as Meningitis, Case Study Reports
July 26, 2018July 27, 2018
Sarcoidosis Risk Higher in Families with Disease History, Study Reports
July 19, 2018July 19, 2018

News

Apple’s ResearchKit App for Sarcoidosis Patients Now Available on Android
July 12, 2018July 12, 2018
Penn Medicine‘s app for sarcoidosis patients, Apple’s ResearchKit, is now available on android. Patients ...
News

NOD2 Mutation, Combined with Other Variants, Influences Familial Sarcoidosis Progression, Study Finds
July 10, 2018July 10, 2018
A G908R mutation in the NOD2 gene is an indicator of familial sarcoidosis, according ...
News

Sarcoidosis in Lungs, Skin, Eyes Linked to Age and Gender in Large Japanese Survey
June 28, 2018June 28, 2018
Sarcoidosis patients can be divided into women over age 40 with skin and eye ...
News

Short-term Air Pollution Exposure Can Increase Severity of Fibrotic Sarcoidosis Respiratory Symptoms, Small Study Finds
June 26, 2018June 26, 2018
A recent study shows that while lung function was unaffected, patients with fibrotic sarcoidosis ...
News

Case Report Describes Rare Coexistence of Sarcoidosis and Tuberculosis in Patient with Severe PAH
June 19, 2018June 19, 2018
A new case report from India describes the occurrence of both sarcoidosis and tuberculosis ...
News

Foundation for Sarcoidosis Research Launches Patient Ambassador Program
June 14, 2018June 14, 2018
The Foundation for Sarcoidosis Research recently launched a Patient Ambassador Program called “Ask the Ambassadors!” ...
News

US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases
June 7, 2018June 7, 2018
As President Trump signed the recently passed Right to Try legislation into law in ...
News

Endocan Levels Can Predict Cardiovascular Involvement in Patients with Sarcoidosis
May 29, 2018May 29, 2018
Levels of endocan, an indicator of inflammation, can be used as a predictive biomarker ...
News

#ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges
May 29, 2018May 29, 2018
Finding treatments and potential cures for rare diseases is crucial, but so is the ...

October 3, 2016October 3, 2016

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

News

Elevated levels of calcium in blood and urine can be associated with the development of bone marrow sarcoidosis, according to a report published in the journal Biomarker Research. The study, “Hypercalcemia Associated With Isolated Bone Marrow Sarcoidosis In A ... Read more

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