Updates

July 10, 2020July 8, 2020
After Celebrating My Birthday, I’m Focused on Self-improvement

I accomplished a few things that I’m proud of this past week. I finally finished one of my online nutrition courses, and I finally ... Read more
July 9, 2020July 9, 2020
Worse Physical Condition, Lung Function Predict Shorter Lives Without Transplant in SAPH Patients, Study Finds

People with sarcoidosis-associated pulmonary hypertension who have reduced physical fitness or worse gas exchange capacity live significantly shorter times without requiring a transplant, a ... Read more
July 7, 2020July 7, 2020
My New Vegetarian Diet Has Brought Sarcoidosis Pain Relief

My Fourth of July celebrations always include barbecue, but not this year. I made the leap to a vegetarian diet on May 23. I’m ... Read more
July 2, 2020July 2, 2020
Foundation Seeking Members for New Patient Advisory Committee

People living with or affected by sarcoidosis are invited to apply for membership in the new patient advisory committee being established by the Foundation ... Read more
June 30, 2020June 26, 2020
Breathing Polluted Air Is the Deadly Norm for Many

With stifling June heat and pollen cleared by rainfall, I opened my windows. Drivers finished their workdays and inched forward in traffic outside my home. ... Read more

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October 3, 2016October 3, 2016

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

News

Elevated levels of calcium in blood and urine can be associated with the development of bone marrow sarcoidosis, according to a report published in the journal Biomarker Research. The study, “Hypercalcemia Associated With Isolated Bone Marrow Sarcoidosis In A ... Read more

Updates

After Celebrating My Birthday, I’m Focused on Self-improvement

Worse Physical Condition, Lung Function Predict Shorter Lives Without Transplant in SAPH Patients, Study Finds

My New Vegetarian Diet Has Brought Sarcoidosis Pain Relief

Foundation Seeking Members for New Patient Advisory Committee

Breathing Polluted Air Is the Deadly Norm for Many

This Father’s Day Reminded Me of a Valuable Lesson

Severe Fatigue Very Common in Pulmonary Sarcoidosis Patients, Dutch Study Shows

DIY Project Drills Home Important Sarcoidosis Lessons

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

A Therapist Could Have Brought More Peace to My Hospitalization

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Putting Fears Aside to Resume Crucial Healthcare

MRI ‘Patterns’ May Aid in Diagnosing Sarcoidosis Affecting the Spine

Coalition Will Address Racial Disparities in Rare Disease Communities

Long-term Telecommuting Could Benefit the Rare Disease Community

Sarcoidosis Doesn’t Define My Personal Progress

ATYR1923 Binds to NRP2 Protein Found at Key Immune Cells, Data Show

Sarcoidosis Progress Continues Behind the Scenes

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

My Love Affair with Meat Hits a Rocky Patch

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Living with Sarcoidosis Can Change Your Thinking for the Better

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

The Season of Sneezing Is Upon Us

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Sarcoidosis Does Not Increase Risk of Worse COVID-19 Outcomes, Early Survey Data Show

Lingering Questions About Lyme Disease

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

I’m Quarantine Ready, Thanks to Sarcoidosis

Chitotriosidase Enzyme May Be Indicator of Sarcoidosis Activity, Severity

We’re Stronger Than We Think

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

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After Celebrating My Birthday, I’m Focused on Self-improvement

Worse Physical Condition, Lung Function Predict Shorter Lives Without Transplant in SAPH Patients, Study Finds

My New Vegetarian Diet Has Brought Sarcoidosis Pain Relief

Foundation Seeking Members for New Patient Advisory Committee

Breathing Polluted Air Is the Deadly Norm for Many

This Father’s Day Reminded Me of a Valuable Lesson

Severe Fatigue Very Common in Pulmonary Sarcoidosis Patients, Dutch Study Shows

DIY Project Drills Home Important Sarcoidosis Lessons

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

A Therapist Could Have Brought More Peace to My Hospitalization

Adhering to Treatment Plan Linked to Higher Quality of Life in Sarcoidosis Patients

Subscribe to our mailing list

Putting Fears Aside to Resume Crucial Healthcare

MRI ‘Patterns’ May Aid in Diagnosing Sarcoidosis Affecting the Spine

Coalition Will Address Racial Disparities in Rare Disease Communities

Long-term Telecommuting Could Benefit the Rare Disease Community

Sarcoidosis Doesn’t Define My Personal Progress

ATYR1923 Binds to NRP2 Protein Found at Key Immune Cells, Data Show

Sarcoidosis Progress Continues Behind the Scenes

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

My Love Affair with Meat Hits a Rocky Patch

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Living with Sarcoidosis Can Change Your Thinking for the Better

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

The Season of Sneezing Is Upon Us

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Sarcoidosis Does Not Increase Risk of Worse COVID-19 Outcomes, Early Survey Data Show

Lingering Questions About Lyme Disease

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

I’m Quarantine Ready, Thanks to Sarcoidosis

Chitotriosidase Enzyme May Be Indicator of Sarcoidosis Activity, Severity

We’re Stronger Than We Think

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

Pin It on Pinterest