Updates

April 13, 2021April 7, 2021
Smooth Sailing After My First COVID-19 Vaccine Shot

Eyelids fluttering open to a new day, I mentally searched my body for signs that anything was different. But a sore arm with a Band-Aid ... Read more
April 9, 2021April 9, 2021
Sarcoidosis Advocate Appointed Patient Advisor at aTyr

aTyr Pharma, which is developing a candidate therapy for pulmonary sarcoidosis called ATYR1923, has appointed Andrea Wilson — a sarcoidosis patient and advocate who co-founded the ... Read more
April 5, 2021April 1, 2021
Carl Jung Helped Me Understand the Pitfalls of Sarcoidosis

“I am not what happened to me, I am what I choose to become.” — Carl Jung I was browsing the internet last week looking ... Read more
April 2, 2021April 2, 2021
Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how ... Read more
April 2, 2021April 2, 2021
This April, Celebrate Sarcoidosis Awareness Month

From taking part in a virtual endurance challenge to joining in a virtual cooking class, to watching several speaker presentations, advocates are set to mark ... Read more

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October 3, 2016October 3, 2016

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated

News

Elevated levels of calcium in blood and urine can be associated with the development of bone marrow sarcoidosis, according to a report published in the journal Biomarker Research. The study, “Hypercalcemia Associated With Isolated Bone Marrow Sarcoidosis In A Patient ... Read more

Updates

Smooth Sailing After My First COVID-19 Vaccine Shot

Sarcoidosis Advocate Appointed Patient Advisor at aTyr

Carl Jung Helped Me Understand the Pitfalls of Sarcoidosis

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

This April, Celebrate Sarcoidosis Awareness Month

Let’s Show the Many Faces of Sarcoidosis This Awareness Month

Sarcoidosis Left Me Feeling Fractured, Broken, and Like a Work in Progress

Virtual Vigil Planned as Part of Sarcoidosis Awareness Month

Do Long-haul COVID-19 Patients Provide Clues for Sarcoidosis Treatment?

Low Monocytes Levels May Predict Remission, Slowed Disease Progression

The Struggle to Feel Seen and Heard With Sarcoidosis

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The First Hurdle to Clear to Get in Shape Is Often Fear

Being Saved by Grace Helps Me Live Courageously With Sarcoidosis

Low Lymphocytes Levels Can Help Diagnose Active Sarcoidosis

While You Wait for Normal to Return, Check Out These Sarcoidosis Events

Pink, Green, Blue and Purple Lights Illuminated World for Rare Disease Day

Stress, Fear, and Sarcoidosis: You Have the Tools to Deal With It

Xentria Seeks to Begin Clinical Trial of XTMAB-16

The Early Bird Wins (I Hope) When It Comes to Daylight Saving Time

Rare Disease Day ‘Patient Hero’ Raises Awareness Through Fashion

Adults Sought for Sarcoidosis Inflammation Study

Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Help Tackle Sarcoidosis by Speaking Up on Rare Disease Day

Protalix, SarcoMed Partner to Advance PRX-110 for Pulmonary Sarcoidosis

Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients

Remission Doesn’t Always Mean the End of Symptoms

FDA Grants Priority Review to Esbriet for Unclassifiable Interstitial Lung Disease

Pandemic Won’t Stop Rare Disease Day on Feb. 28

Victories Are Sweeter When You Have to Work Hard for Them

NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns

Inflammation Limited to Front of Eye Can Aid Recovery in Ocular Sarcoidosis

Why You Need to Know About Cardiac Sarcoidosis Screening

We Learn About Ourselves When Learning About Others

High Calcium Levels, Bone Marrow Sarcoidosis May Be Associated