April 19, 2018April 19, 2018
Exposure to Chromium May Cause Subcutaneous Sarcoidosis, Case Report Suggests

Exposure to chemical substances used in leather tanning may have been the cause of a rare case of subcutaneous ... Read more
April 17, 2018April 17, 2018
Sarcoidosis Research Foundation Awards Travel Grants to Top Investigators Presenting at Meeting

The Foundation for Sarcoidosis Research (FSR) has invested $1 million in its new Clinical and Research Fellowship Program. It also ... Read more
April 13, 2018April 13, 2018
April is Time to Take the #SarcoidStories Challenge

The Foundation for Sarcoidosis Research is calling for everyone to participate this month of April in a campaign to ... Read more
April 12, 2018April 12, 2018
NIH Agency Pioneers Collaborative Research into Rare Diseases

A little-known government entity within the National Institutes of Health (NIH) is helping to lead U.S. efforts to speed ... Read more
April 10, 2018April 10, 2018
4th Annual Sarcoidosis Campaign Aims to Raise Awareness, Educate Patients

The American Lung Association, CHEST Foundation and the Foundation for Sarcoidosis Research (FSR) teamed up to bring greater awareness to sarcoidosis ... Read more
April 5, 2018April 5, 2018
Migraines Are Common in Sarcoidosis Patients, Study Finds

A recent study found that migraines are at least as common in patients with sarcoidosis as they are in ... Read more
April 3, 2018April 3, 2018
Wearable Defibrillator Can Prevent Sudden Death in Cardiac Sarcoidosis Patients, Study Shows

A wearable cardioverter-defibrillator can prevent sudden death in patients with cardiac sarcoidosis, new research demonstrates. A study found the ... Read more
March 27, 2018March 27, 2018
Bardoxolone Improved Sarcoidosis Patients’ Exercise Ability in Phase 2 Trial

Bardoxolone methyl, an investigational therapy developed by Reata Pharmaceuticals, was shown to significantly improve the exercise capacity of patients ... Read more
March 22, 2018March 22, 2018
Link Between Sarcoidosis and Lung Microbes to Be Studied in NIH-Funded Project

A project studying the possible link between sarcoidosis and lung microbes received a four-year, $2.7 million grant from the ... Read more
March 19, 2018March 19, 2018
Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event

Genetic sequencing and the speed with which it can help diagnose a child’s disease — in addition to revealing the ... Read more
March 15, 2018March 15, 2018
Common Skin Bacteria May Trigger Granuloma Formation in Sarcoidosis, Study Suggests

Infection from the bacteria Propionibacterium acnes is found frequently and at high rates in the lymph nodes of sarcoidosis patients and ... Read more
March 14, 2018March 14, 2018
‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease Day Event

When it comes to rare diseases, one that definitely makes the list is spinal muscular atrophy with respiratory distress ... Read more

April 19, 2018April 19, 2018

Exposure to Chromium May Cause Subcutaneous Sarcoidosis, Case Report Suggests

Exposure to chemical substances used in leather tanning may have been the cause of a rare case of subcutaneous (under-the-skin) sarcoidosis around a man’s left eye and mouth, a ... Read more

April 17, 2018April 17, 2018

Sarcoidosis Research Foundation Awards Travel Grants to Top Investigators Presenting at Meeting

The Foundation for Sarcoidosis Research (FSR) has invested $1 million in its new Clinical and Research Fellowship Program. It also gave travel awards to the first authors of the top ... Read more

April 13, 2018April 13, 2018

April is Time to Take the #SarcoidStories Challenge

The Foundation for Sarcoidosis Research is calling for everyone to participate this month of April in a campaign to celebrate those living with sarcoidosis. This year’s campaign, #SarcoidStories, is ... Read more

April 12, 2018April 12, 2018

NIH Agency Pioneers Collaborative Research into Rare Diseases

A little-known government entity within the National Institutes of Health (NIH) is helping to lead U.S. efforts to speed up the development of therapies for some 7,000 rare diseases. ... Read more

April 10, 2018April 10, 2018

4th Annual Sarcoidosis Campaign Aims to Raise Awareness, Educate Patients

The American Lung Association, CHEST Foundation and the Foundation for Sarcoidosis Research (FSR) teamed up to bring greater awareness to sarcoidosis and encourage patients to be more proactive in their treatment ... Read more

April 5, 2018April 5, 2018

Migraines Are Common in Sarcoidosis Patients, Study Finds

A recent study found that migraines are at least as common in patients with sarcoidosis as they are in the general public, and they affect women more than men. ... Read more

April 3, 2018April 3, 2018

Wearable Defibrillator Can Prevent Sudden Death in Cardiac Sarcoidosis Patients, Study Shows

A wearable cardioverter-defibrillator can prevent sudden death in patients with cardiac sarcoidosis, new research demonstrates. A study found the device was capable of restoring heart rhythm in all patients ... Read more

March 27, 2018March 27, 2018

Bardoxolone Improved Sarcoidosis Patients’ Exercise Ability in Phase 2 Trial

Bardoxolone methyl, an investigational therapy developed by Reata Pharmaceuticals, was shown to significantly improve the exercise capacity of patients with pulmonary hypertension (PH) associated with sarcoidosis in a Phase 2 ... Read more

March 22, 2018March 22, 2018

Link Between Sarcoidosis and Lung Microbes to Be Studied in NIH-Funded Project

A project studying the possible link between sarcoidosis and lung microbes received a four-year, $2.7 million grant from the National Institutes of Health (NIH). The research will be conducted ... Read more

March 19, 2018March 19, 2018

Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event

Genetic sequencing and the speed with which it can help diagnose a child’s disease — in addition to revealing the genes that cause at least half of the 7,000 rare ... Read more

March 15, 2018March 15, 2018

Common Skin Bacteria May Trigger Granuloma Formation in Sarcoidosis, Study Suggests

Infection from the bacteria Propionibacterium acnes is found frequently and at high rates in the lymph nodes of sarcoidosis patients and may contribute to the formation of granulomas, a small study ... Read more

March 14, 2018March 14, 2018

‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease Day Event

When it comes to rare diseases, one that definitely makes the list is spinal muscular atrophy with respiratory distress — SMARD, for short. Hunter Pageau, a 12-year-old boy from ... Read more