“Who is of so little faith that in a moment of great disaster or heartbreak has not called to his God? Who has not cried out when confronted with danger, death, or mystery beyond his normal experience or comprehension? From where has this deep instinct come which escapes from the…

The first participant has been dosed in a Phase 2 clinical trial testing the experimental therapy namilumab in people with pulmonary sarcoidosis, the therapy’s developer Kinevant Sciences announced. “We are excited to advance namilumab as a promising new treatment for pulmonary sarcoidosis since it has a mechanism of…

The other day I picked up my new glasses — a pair of bifocals, because my doctor said that progressive lenses would worsen my dizziness and vertigo. The same day, I was discharged from physical therapy because my insurance company didn’t see enough progress. Since every other treatment has…

Xentria has raised $25 million in funding to further the development of XTMAB-16, its experimental antibody therapy for sarcoidosis. The funding will allow for the launch of a global clinical trial of XTMAB-16 in sarcoidosis patients, planned to start early next year. “I am excited about this…

“‘How does one become a butterfly?’ she asked pensively. “‘You must want to fly so much that you are willing to give up being a caterpillar.'” — Trina Paulus, “Hope for the Flowers” Winners never quit, and quitters never win. When the going gets tough, … you know…

“I may not know where I’m going, but I’ll let you know when I get there.” I used to say that to a few of my college friends. I was always the one who knew where I wanted to go in life, even though I wasn’t sure how I’d get…

The Ann Theodore Foundation and the Milken Institute have awarded more than $3 million to six research teams nationwide to study sarcoidosis topics ranging from risk factors for the poorly understood disease to its underlying mechanisms. The Ann Theodore Foundation Breakthrough Sarcoidosis Initiative grant program seeks to understand…

If there’s anything last week’s Emmy Awards reaffirmed for me, it’s that I love Lizzo. More than her music, I adore her as a person and admire what she represents. When her show, “Lizzo’s Watch Out for the Big Grrrls,” won Outstanding Competition Program, the “About Damn Time” singer gave…

Happy anniversary to me! On Sept. 24, 2014, I was diagnosed with sarcoidosis. These eight years have been quite amazing, though I previously thought the date had been closer to nine years. Regardless, when I think of where my life was at that time — in Maryland, struggling to…

The other day, I was heading home from my intravenous immunoglobulin (IVIG) infusion, grateful to be back on schedule after my recent insurance delay. I was mindlessly singing along to whatever was playing on the radio, which turned out to be Matchbox Twenty — and I realized that…