Post-traumatic stress disorder (PTSD) is getting more coverage in the news. I’ve often wondered if I have PTSD since I started experiencing symptoms after I was diagnosed with sarcoidosis. Most people probably believe that PTSD only affects veterans, victims of sexual assault, or people who have witnessed death or…
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For many like myself with sarcoidosis and other chronic illnesses, reducing prescription costs is an ongoing effort. As the year winds down, there are a few actions we can take to help achieve that goal. Review and renew Each fall, I take stock of my prescriptions and determine…
Respiratory disease expert Jesse Román, MD, is the new CEO of Philadelphia’s Jane and Leonard Korman Respiratory Institute. Románhas published about 115 peer-reviewed articles in scientific journals and 20 manuscripts — primarily on sarcoidosis, interstitial lung disease and pulmonary fibrosis. Román’s most recent position was chairman of the Department of…
To be clear, no one ever made the claim that vitamins and supplements would cure me of sarcoidosis. However, they might boost my immune system, and that might help me to better manage the symptoms. From my own research and conversations with physicians, I learned that we should…
Thalomid (thalidomide) is a treatment approved by the U.S. Food and Drug Administration (FDA) and usually used in combination with other medicines to treat multiple myeloma, a cancer of the white blood cells, and alone or in combination to treat a form of leprosy. Thalidomide may be used…
Before sarcoidosis hit me, I was a Pilates enthusiast and practiced yoga, too. Between classes and my practice at home, I stayed rather active with these two forms of exercise. However, like so much in life, the ability to stay active drastically changed after my diagnosis. But then an…
Early on in my chronic illness journey, before I knew I had sarcoidosis, I was struggling. I desperately sought answers about what was happening to me, not only physically, but also in other ways, like what my life would look like moving forward, how much of it I’d lose,…
Rituximab is a medication that targets immune system cells called B-cells, and can be used to treat sarcoidosis. Rituximab, marketed as Rituxan and manufactured by Genentech, has been approved by the U.S. Food and Drug Administration (FDA) to treat rheumatoid arthritis; blood cancers…
Loyola Medicine has just performed its 900th transplant, reaching a new milestone in its lung transplant program for patients with conditions affecting the lungs like sarcoidosis. Loyola has outperformed all other transplant centers in Illinois, with three times as many transplants as all the remaining centers combined. In 1988 the…