Aah … spring has finally sprung! The weather is finally trying to cooperate by giving us a few comfortable, mild days, and folks are starting to come out of their shells to enjoy it. Yesterday was the first day in over a year that I actually…
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As a Marvel fan, this week’s long-awaited premiere of “Avengers: Endgame” has me thinking about the sarcoidosis community’s hidden superpowers. They aren’t flashy. We can’t fly. We can’t shoot webs from our wrists and swing through neighborhoods. And we can’t transform our bodies into a hulking green beast — though…
The Early Morning Wake-up Call
A piercing scream woke me from a sound sleep that morning. It echoed from every corner of the house. My brain struggled to identify the source of the squealing before finally realizing it was coming from me. Intense pain was all over my body. Like a bad toothache, it came…
Stumbling into the Unknown
I was thrilled to find out the television network NBC will be airing a sarcoidosis PSA this month to raise awareness about the disease, which so many fail to recognize at the onset of symptoms. I did. Night sweats — which had me waking as drenched as if I…
Since I received a diagnosis of sarcoidosis in my lungs, I have made frequent visits to my pulmonologist to monitor my condition to see if it is progressing and to assess my overall health. On…
This Too Shall Pass
Like you, I’m not the only person that has daily issues living with sarcoidosis. As I tell some friends, every day is a new adventure. That adventure may include riding an emotional roller coaster, or feeling so upbeat and motivated that I’ll venture out to the gym for a…
Obstacles Don’t Define Us
I was diagnosed with sarcoidosis not long after my mother passed away in 2003, and it was totally by accident. I was having a conversation with a pulmonologist about participating in a sleep study. During the meeting, he talked about breathing issues and other conditions related to sleep apnea,…
The investigational therapy ATYR1923 for pulmonary sarcoidosis may help decrease lung inflammation by halting the infiltration of immune cells called neutrophils into the lungs, according to a preclinical study in mice. Suzanne Paz, PhD, from the therapy’s developer aTyr Pharma, presented the findings in a poster, titled “…
Middle-aged adults with impaired lung function, such as people with sarcoidosis, are at higher risk of dementia and mild cognitive impairment, according to a long-term follow-up study. The study, “Impaired Lung Function, Lung Disease and Risk of Incident Dementia” was published in the American Journal of…
Better quality of life and greater functionality are the most important treatment goals for people with sarcoidosis, according to a large-scale survey of patient perspectives. Survey results are expected to be included in European Respiratory Society (ERS) guidelines to be released this year. They were reported in “…