News

May 7, 2021May 10, 2021

Despite COVID Vaccinations, Caution Still Crucial for Transplant Recipients

News, syndicated

Long before COVID-19 changed the world, organ transplant recipients were wearing masks to shield themselves from airborne threats. Immunosuppressive medicines, which often are a lifelong after a transplant, require these people ... Read more

May 7, 2021May 7, 2021

Tickets on Sale for Foundation for Sarcoidosis Research June Summit

News

The Foundation for Sarcoidosis Research (FSR) is holding a two-day virtual patient education summit focused on providing relevant medical content on sarcoidosis, patient and care-partner perspectives, and updates on current and ... Read more

April 30, 2021April 30, 2021

$50,000 Grant to Support Study of Specific Immune Cells in Sarcoidosis

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A professor at Northwestern University has been awarded a $50,000 American Thoracic Society (ATS)/Mallinckrodt Pharmaceuticals Research Grant to study the role of immune macrophages in the development of sarcoidosis. Sarcoidosis is ... Read more

April 23, 2021April 23, 2021

Short In-hospital Exercise Program Found to Improve Patient Health

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A short, in-hospital exercise program was found to decrease the levels of fats, or lipids, in the blood of people with sarcoidosis and to improve their physical health. In fact, ... Read more

April 22, 2021April 22, 2021

Quick Approval Given COVID Vaccines Raise Concerns, Rare Disease Patients Say

News, syndicated

More than half of the people with rare diseases and their caregivers, asked in a survey, were undecided or less than willing to be vaccinated for COVID-19 if a vaccine ... Read more

April 16, 2021April 16, 2021

EveryLife Scholarship Fund Open Until May 7 for Adults With Rare Diseases in US

News, syndicated

The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a rare disease pursue personal goals through training and education. For a ... Read more

April 9, 2021April 9, 2021

Sarcoidosis Advocate Appointed Patient Advisor at aTyr

News

aTyr Pharma, which is developing a candidate therapy for pulmonary sarcoidosis called ATYR1923, has appointed Andrea Wilson — a sarcoidosis patient and advocate who co-founded the Foundation for Sarcoidosis Research (FSR) ... Read more

April 2, 2021April 2, 2021

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

News

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking. But exactly how expensive — in terms of ... Read more

April 2, 2021April 2, 2021

This April, Celebrate Sarcoidosis Awareness Month

News

From taking part in a virtual endurance challenge to joining in a virtual cooking class, to watching several speaker presentations, advocates are set to mark Sarcoidosis Awareness Month, observed each ... Read more

March 26, 2021March 26, 2021

Virtual Vigil Planned as Part of Sarcoidosis Awareness Month

News

April is Sarcoidosis Awareness Month and the Foundation for Sarcoidosis Research (FSR) is holding a virtual Memorial Monday Candlelight Vigil on April 26 to honor those who have died from the rare disease. ... Read more