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February 12, 2019February 12, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

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Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions of people — estimates run ... Read more

February 11, 2019February 11, 2019

Uncommon Case of Sarcoidosis Found in ARDS Patient, Study Reports

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A case study diagnosing sarcoidosis upon autopsy in a patient with acute respiratory distress syndrome (ARDS) of unknown cause highlights the importance of physicians taking into account this uncommon disease ... Read more

January 31, 2019January 31, 2019

FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases

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The U.S. Food and Drug Administration (FDA) is updating its 2015 draft guidelines for drug discovery in rare diseases, with new guidance on natural history — how disorders such ... Read more

January 28, 2019January 28, 2019

Sarcoidosis Death Rate Rose in US Between 1999 and 2016, Study Reports

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Deaths attributed to sarcoidosis as the primary underlying cause increased between 1999 and 2016 in the United States, according to a recent observational study. The study, “Sarcoidosis deaths in ... Read more

January 21, 2019January 21, 2019

Dutch Cardiologists Using Ventripoint’s AI Tool for Early Diagnosis of PH in Sarcoidosis

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Two cardiologists in the Netherlands are using an artificial intelligence (AI) tool called the VMS Heart Analysis System, developed by Ventripoint Diagnostics, for the early diagnosis of pulmonary hypertension ... Read more

January 14, 2019January 14, 2019

Xeljanz Successfully Used to Treat Patient with Disfiguring Sarcoidosis

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A research team at Yale School of Medicine successfully treated a person with disfiguring sarcoidosis with Xeljanz (tofacitinib) — an existing approved treatment against rheumatoid arthritis — resulting in ... Read more

January 7, 2019January 7, 2019

Impaired Lung Function Linked to Higher Risk of Dementia, Mild Cognitive Decline Later in Life

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Middle-aged adults with impaired lung function, such as people with sarcoidosis, are at higher risk of dementia and mild cognitive impairment, according to a long-term follow-up study. The study, ... Read more

January 4, 2019February 4, 2019

Better Quality of Life Top Goal of Treatment, European Patients Say in Survey

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Better quality of life and greater functionality are the most important treatment goals for people with sarcoidosis, according to a large-scale survey of patient perspectives. Survey results are expected ... Read more

December 21, 2018December 21, 2018

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

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Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time as the promise of new but expensive therapies to ... Read more

December 18, 2018December 18, 2018

aTyr, Foundation for Sarcoidosis Research Announce Phase 1b/2a Trial For ATYR1923

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After the U.S. Food and Drug Administration accepted aTyr Pharma‘s investigational new drug application for ATYR1923, the company announced it will initiate a Phase 1b/2a clinical trial in patients with pulmonary sarcoidosis. The ... Read more

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