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December 9, 2019December 9, 2019

Subgroup of Active T-cells Linked to Worse Disease in Sarcoidosis, Study Reports

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The lungs of patients with sarcoidosis are burdened with a more active subset of immune T-cells, called mucosal-associated invariant T (MAIT) cells, a study reports. The activity of these ... Read more

December 6, 2019December 6, 2019

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

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Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s ... Read more

December 2, 2019December 2, 2019

Certain Immune Cells May Drive Sarcoidosis by Producing Inflammatory Agents, Study Suggests

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Intermediate monocytes, a type of immune cell, may contribute to the development and progression of sarcoidosis through the production of TARC — a molecule that attracts other specific immune ... Read more

November 25, 2019November 25, 2019

Acthar Gel May Improve Sarcoidosis Symptoms, Real-world Study Shows

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Acthar Gel (repository corticotropin injection, or RCI) can improve sarcoidosis symptoms, a real-world study shows. Titled “Repository corticotropin injection in patients with advanced symptomatic sarcoidosis: retrospective analysis of medical ... Read more

November 18, 2019November 18, 2019

UCLA Launches Fundraising Effort for New Research Center for Sarcoidosis, Other Advanced Lung Diseases

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The University of California, Los Angeles (UCLA) is launching a fundraising initiative to help improve treatment for advanced lung diseases, including sarcoidosis. The fundraising effort — called the Lung ... Read more

November 15, 2019November 16, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

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Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 11, 2019November 11, 2019

sIL-2R More Sensitive than ACE at Identifying Possible Cases of Sarcoidosis, Study Finds

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The soluble interleukin 2 receptor (sIL-2R) is more sensitive and specific than the angiotensin-converting enzyme (ACE), one of the most common diagnostic biomarkers of sarcoidosis, at identifying people who ... Read more

November 4, 2019November 4, 2019

Transbronchial Lung Cryobiopsy Helps Provide Definitive Diagnose of Sarcoidosis, Study Suggests

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Transbronchial lung cryobiopsy — a relatively new method of collecting lung tissue for analysis — safely and successfully helps to provide a definitive sarcoidosis diagnosis when the usual and ... Read more

October 28, 2019October 28, 2019

Unusual Case of Tears in Heart Blood Vessels Found in Cardiac Sarcoidosis Patient

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Tears in blood vessels of the heart can occur in people with cardiac sarcoidosis, a case report found, although the incidence of this complication appears to be low. The ... Read more

October 21, 2019October 21, 2019

Depression and Anxiety May Worsen Quality of Life, Lung Function of Patients with Pulmonary Sarcoidosis, Study Says

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Depression and anxiety may worsen the quality of life and lung function of patients with pulmonary sarcoidosis, a study has found. The findings of the study, “Psychological burden associated ... Read more

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