News

May 4, 2020May 4, 2020

Chitotriosidase Enzyme May Be Indicator of Sarcoidosis Activity, Severity

News

An enzyme called chitotriosidase appears to be a reliable biomarker of sarcoidosis, a study suggests. The activity of this enzyme is correlated with sarcoidosis disease activity, severity, dissemination throughout ... Read more

April 29, 2020April 29, 2020

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

News, syndicated

While there are few silver linings to the cloud created by COVID-19, the pandemic that has killed tens of thousands, hobbled economies worldwide and drove millions to quarantine in ... Read more

April 27, 2020April 27, 2020

American Thoracic Society Publishes Guidelines to Help Clinicians Diagnose Sarcoidosis

News

The American Thoracic Society has published its first official guidelines for how best to detect and diagnosis sarcoidosis in clinical practice. The guidelines were published in the American Journal of Respiratory and ... Read more

April 22, 2020April 22, 2020

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

News, syndicated

The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community who are affected by the COVID-19 pandemic in the U.S. ... Read more

April 20, 2020April 20, 2020

Blood Levels of Anti-Inflammatory Protein High in Patients, Study Finds

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Adiponectin, an anti-inflammatory protein produced by adipose tissue, was seen to be elevated in the blood of people with sarcoidosis in a small study, and may help to ease disease severity. ... Read more

April 13, 2020April 13, 2020

NIH $1.98M Grant to Help Develop Easier Way of Diagnosing Sarcoidosis

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The National Heart, Lung, and Blood Institute, part of the National Institutes of Health (NIH), has given a $1.98 million grant to Wayne State University researchers to refine an ... Read more

April 8, 2020April 8, 2020

NORD’s Advice on COVID-19: You’re Stronger Than You Think

News

First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most ... Read more

April 6, 2020April 6, 2020

Joint Campaign to Raise Awareness About Sarcoidosis and COVID-19

News

The Foundation for Sarcoidosis Research is partnering with the American Lung Association for its sixth annual effort to raise awareness about sarcoidosis and provide resources for patients, caregivers, and ... Read more

April 1, 2020April 1, 2020

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

News

The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. ... Read more

March 30, 2020March 30, 2020

Pandemic Likely to Delay Results of Trial into Pulmonary Sarcoidosis Treatment

News

Results of a Phase 1b/2a clinical study evaluating ATYR1923 in people with pulmonary sarcoidosis are likely to be delayed due to the COVID-19 pandemic, its developer, aTyr Pharma, announced. ATYR1923 is ... Read more

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