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November 18, 2019November 18, 2019

UCLA Launches Fundraising Effort for New Research Center for Sarcoidosis, Other Advanced Lung Diseases

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The University of California, Los Angeles (UCLA) is launching a fundraising initiative to help improve treatment for advanced lung diseases, including sarcoidosis. The fundraising effort — called the Lung ... Read more

November 15, 2019November 16, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

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Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 11, 2019November 11, 2019

sIL-2R More Sensitive than ACE at Identifying Possible Cases of Sarcoidosis, Study Finds

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The soluble interleukin 2 receptor (sIL-2R) is more sensitive and specific than the angiotensin-converting enzyme (ACE), one of the most common diagnostic biomarkers of sarcoidosis, at identifying people who ... Read more

November 4, 2019November 4, 2019

Transbronchial Lung Cryobiopsy Helps Provide Definitive Diagnose of Sarcoidosis, Study Suggests

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Transbronchial lung cryobiopsy — a relatively new method of collecting lung tissue for analysis — safely and successfully helps to provide a definitive sarcoidosis diagnosis when the usual and ... Read more

October 28, 2019October 28, 2019

Unusual Case of Tears in Heart Blood Vessels Found in Cardiac Sarcoidosis Patient

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Tears in blood vessels of the heart can occur in people with cardiac sarcoidosis, a case report found, although the incidence of this complication appears to be low. The ... Read more

October 21, 2019October 21, 2019

Depression and Anxiety May Worsen Quality of Life, Lung Function of Patients with Pulmonary Sarcoidosis, Study Says

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Depression and anxiety may worsen the quality of life and lung function of patients with pulmonary sarcoidosis, a study has found. The findings of the study, “Psychological burden associated ... Read more

October 14, 2019October 14, 2019

FDA Grants Breakthrough Therapy Status to Ofev for Sarcoidosis, Other ILDs

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The U.S. Food and Drug Administration (FDA) has granted the designation of breakthrough therapy to Ofev (nintedanib) for the treatment of patients with sarcoidosis and other types of progressive fibrosing ... Read more

October 7, 2019October 7, 2019

Mycophenolate Mofetil May Be Effective as Alternative Sarcoidosis Treatment, Small Study Suggests

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Mycophenolate mofetil (MMF) significantly reduced disease symptoms in people with sarcoidosis, and helped to reduce their daily dose of corticosteroids, a small study suggests. The study, “Mycophenolate mofetil as an alternative treatment ... Read more

September 30, 2019September 30, 2019

LAS System May Fail to Identify Sarcoidosis Patients at Urgent Need of Lung Transplant, Study Finds

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The current scoring system used to assess the urgency of lung transplants, called LAS (lung allocation score), fails to predict the risk of death in people with sarcoidosis, a ... Read more

September 27, 2019September 27, 2019

NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

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Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, MD, chairman of NORD’s board ... Read more

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