Managing Sarcoidosis and Mental Health During the COVID-19 Crisis

Managing Sarcoidosis and Mental Health During the COVID-19 Crisis
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This has been a rough week, to say the least. Last week, I lost one of my oldest aunts. She was my mother’s oldest sister and she meant a lot to me. She lived in Washington, D.C., and she let me live with her when I took a job there. Two days after her death, I lost my oldest uncle in Virginia. He was my aunt’s brother-in-law. When those two got together, the fireworks started. They were great people and their deaths have left multiple holes in our family.

Then COVID-19 hit the scene

Initially, I was somewhat in a panic. Having pulmonary sarcoidosis means I have severe lung issues and should remain indoors until this pandemic passes. I had two doctors’ appointments last week, one with my pulmonologist and the other with a gastroenterologist.

Upon arriving at my pulmonologist’s office, I was handed a face mask and asked to wear it. I quickly noticed that everyone in the waiting area was wearing one. So much for feeling out of place. But I totally understood and was happy to oblige.

The next day, I returned to the hospital for my second appointment. As soon as I entered the building, I saw that there weren’t a lot of people mulling around. The security guard was asking folks if they knew where they were going and was handing them face masks.

When I arrived at my appointment, surprisingly, not one patient or staff member was wearing a mask. Once I finished my appointment, I asked the nurse for a mask and she gave me the rest from a box on the counter. I left feeling properly equipped to enter the real world.

Remain calm and proceed

The next few days were very stressful. Having serious lung issues, watching all the news coverage about voluntary quarantining and social distancing brought back memories of the two months I spent in the hospital during summer 2017. Spending an excessive amount of time alone can affect a person’s mental health, especially when it seems as if there’s no answer in sight.

I started getting our household in order. My mother-in-law and I went to a few supermarkets. We wanted to make sure each of our households had plenty of groceries and staples in the event we were housebound for more than the recommended 15 days. We even made sure we had enough “adult” beverages on hand to enjoy while quarantined.

My mother-in-law is like my personal bodyguard. I usually take her shopping with me because she makes sure people stay away from me when I’m wearing my oxygen.

Control the situation before it controls you

This past Sunday, my wife and I shopped for a few more needed items that were on sale. When we arrived at the market, I put on my oxygen, plastic gloves, and a face mask from my doctor’s appointment. Inside the store, some people looked at me oddly. Truth be told, wearing all of this ensures me peace of mind because no one dares come near me — social distancing at its best.

Surprisingly, the other shoppers were very pleasant considering we’re in the middle of a health crisis. I even saw one employee wearing a mask and plastic gloves like me. She was exercising social distance, too! We got our groceries and made our way home, laughing at my social distancing skills.

Later that evening, my family and I discussed my health concerns in relation to the global health crisis. I asked them to limit their time out of the house, especially if they’re around other people, because that could have a negative effect on me. I also suggested we periodically disconnect ourselves from the news and social media because of the amount of information being shared. Too much is never a good thing, especially information with a lot of mixed messages.

Having a chronic health condition is serious. You always have to be on top of both your physical and mental health because a crisis like this can escalate your stress level. During this time, your mental health plays a huge part in your ability to physically adjust to this “new” and hopefully short normal. Remember, you’re not alone. There’s safety in numbers and we all have to stick together, figuratively.

columnist pic
Charlton Harris suits up for an outing. (Photo by Charlton Harris)

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Note: Sarcoidosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Sarcoidosis News or its parent company, BioNews Services, and are

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15 comments

  1. Peter says:

    Funny, but your article almost brought me to tears.
    I’m reading because I have sarcoidosis in the lungs, and am concerned myself, even if I am lucky enough to have 80’ish percent lung capacity. Scary times, but I’m still at work. Still hoping for the best outcome for all.
    No statements, about sarcoidosis patients, from health professionals in my country 🙁

    • Charlton Harris says:

      Hey Peter,
      Thanks for reading and your response. I live in Philly, and haven’t heard anything regarding this virus affecting those with sarcoidosis either. As a rule of thumb, I wear my oxygen, a mask and plastic gloves when I go out to ensure people stay away from me! lol
      I think there’s a lot more to this virus than is being made public, just know that WE HAVE TO TAKE EXTRA PRECAUTIONS when dealing with people-family members included. We’re still fighting for a reason-stay strong!

  2. Vince says:

    Hello Brothers and sisters
    Have sarcoid as well. 38 years. 72 years old now —I am finding some relief from Mullein tea (bulk 1lb pack ) from amazon… 4 cups a day- steep for twenty min. Make a full pot stain and refrigerate— relieves and helps with all pulmonary and sinus issues…google the benefits. Serrapetase helps me by eating scare tissue and reducing my pain..Google it….Co q 10 , Magnesium , L-carnitine for heart support…D- ribrose for energy support and Niacin for blood flow…D.C.A. to help fight against auto immune weakness….Do your own investigation and make your own decisions…the above has given me a life such as it is….V

    • Charlton Harris says:

      Thanks for your comments. I use Mullein daily and wild cherry bark-both have tremendous benefits on my pulmonary issues. i also take cumin and reishi mushrooms-great for the immune system.

      Thanks for your input!

      -C-

  3. Ulf says:

    Hi, very god text Charlton, thank you for sharing. I was diagnosed with sarkiodos tree years a go, they accidently find it when i was voluntary in a medical study. I have no symptom and meet my doctor once a year for test. Now with the Corona epidemic i contacted the hospital for advise related to the sarkiodos but it is the same for anyonelese how is not in the riskgroups? They also said that they don´t know how my sarkiodos react if i get infected. Not much help there. I work a lot at home anayway and following the news and to avoid people, it´s not easy and i have a family.
    I´m glad i find your site.

    • Charlton Harris says:

      Hi Ulf-thanks for your compliment on the column. I’m 55 yrs old and have had pulmonary sarcoidosis for 10-12 yrs. We are considered “high risk” with our health conditions, but you can remain safe if you self isolate (even with your family) and make sure if they go out that they’re protected as well. Remember, whatever they bring home can affect you too. I think the best thing for us with health issues to do is stay away from people, and to make sure we sanitize, wash and clean EVERYTHING we come in contact with. If you can, face masks and plastic gloves will keep people away from you if you have to go outside! 🙂

      • Ulf says:

        Thanks for the god advice. I live in Sweden and i think the goverment has some control we don´t have (yet) the scenario like Italy or other european countries. But i follow the rules and hope for the best.
        Have good day.

        • Charlton Harris says:

          Thanks for taking time to read the column, and thanks for practicing safety during these times. Remember, we’re all in this TOGETHER as a sarc family! Peace to you! 🙂

  4. Jimmy says:

    Hello, I’m living in the uk , I have sarcoidosis for 10 years I’m 49 years old and this coronavirus is starting to sweep through our country real fast. I have a wife and a 16 year old daughter, Any information on what precautions around the house I should take to protect all of us, can I share a bed with my wife?, how much risk is my body at?. Our government has said a million and half people with severe health problems should self isolate for 12 weeks (letter to follow) do you think I’m in that category?. I Olson walk round golf course I’m I still allowed to do this ?.

    • Charlton Harris says:

      Hey Jimmy-Thanks for reading!
      I’ve had pulmonary sarcoidosis for at least 10-12 years, maybe longer. Like you, we’re not getting any information about how we should act in this situation. Like you, I’m married with 2 children and I tell my family that we should self quarentine in our home with very to no exposure to anyone if we leave. I’ve been out a few times wearing my oxygen, face mask and plastic gloves and when people see me, they go the other way. . . which is WHY I wear all the stuff. As far as home health goes, excercise in your home if you can, I gargle with warm salt water to loosen any phlem and to lubricate my throat and drink lots of hot tea. Remember your health comes first, so follow your gut during this time.

  5. Keyla says:

    Thank you all very helpful. My mom has Same condition for years. She’s in her 60s. She been self guaranteed for few weeks. Now she’s having flu like simtoms. I’m hoping is just that 🤞🏼

    • Charlton Harris says:

      I’m hoping it’s nothing serious either. I’ve been self quarantine myself and I’m ready to get out! Masks, gloves and rest will help along with a good diet and tea. 🙏🏽🙏🏽🙏🏽 for mom!

  6. Melissa Sturgill says:

    Great to follow situations related to sarcoidosis and risk factor. I am a health care therapist at a nursing home, 55 YO, and recovering from gallbladder surgery. Our state is in a stay at home but I am supposed to return to work next week. When I first ready about high risk groups I could not find enough information to determine if I am in the group. Contacted my family doctor for input in regards to am I high risk and should I return to work and she messaged me back I just don’t know what to tell you, This is all knew, I would have to follow cdc guidelines. Than my surgeon knowing I have sarcoidosis did not seem concerned about me going back to work, so I contacted my lung specialist for input. The nurse came on the phone and stated, “you are not AS high risk because you are not currently taking immunosuppressant drugs”. Even If I push further to try to protect myself there is no help with income being granted for working people who are high risk! I even discussed My concerns with my human resource person In my company by email and she literally did not respond. Their only concern was that I return to work following my surgeons release. I believe that everything should be spelled out clearly for public to choose but if they choose to stay home and stay protected not go broke in the process! Please fill me in if there is anything I am missing. 10 year with sarcoidosis and no further decline from initial but I am generally cautious when it comes to upper respiratory virus. I understand the fear!

    • Charlton Harris says:

      Greetings-I’m not sure where you’re from, I’m from the States-Philly. I constantly live with the fact that I’m an “at risk” person for any type of illness. I will tell you that this Covid-19 is very scary since it seems to be developing into something different everyday. My suggestion is that since you are in the health field, you should consider YOUR HEALTH first and foremost. With that said, ALWAYS TAKE PRECAUTIONS FIRST FOR YOURSELF! You’re no good to anyone if you’re ill; moreover, sick. Knock wood, I’ve been really good during this quarentine; however, my family seems to not take this as serious as I do-I get that. I also practice “social distance” from them too! lol
      Don’t put yourself in harms way, and if those that don’t understand your situation, than “oh well”, you don’t have to explain, you just have to be well enough to fight another day! Stay healthy and peace!

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