I was recently scrolling through my Instagram feed when I saw a post from another sarcoidosis advocate that struck me. It was a simple video showing her with the text “1974” and a caption that read, “Starting today I’m 48 years old for only 48 more days. I’m entering…
“Hang on a sec, hon,” I called to my husband in the car, at the airport, and again on the plane. “I want to get a good shot. I’m sure something from this trip will work its way into my next column.” Boy, was I right — but not in…
How are you? It’s such a common question, I’ve even learned to say it in multiple languages: Cómo estás? (Spanish), Eich at/ata? (Hebrew), Come stai? (Italian), Comment allez-vous? (French), Nǐ hǎo ma? (Chinese), Ti kanis? (Greek) — and let us not forget, “How YOU doin’?” (Joey Tribbiani, “Friends”). Ironically, when people…
The other day I picked up my new glasses — a pair of bifocals, because my doctor said that progressive lenses would worsen my dizziness and vertigo. The same day, I was discharged from physical therapy because my insurance company didn’t see enough progress. Since every other treatment has…
“‘How does one become a butterfly?’ she asked pensively. “‘You must want to fly so much that you are willing to give up being a caterpillar.'” — Trina Paulus, “Hope for the Flowers” Winners never quit, and quitters never win. When the going gets tough, … you know…
As I type this, it’s the evening of Yom Kippur, the final night of the Jewish High Holy Days. It’s a period of reflection and atonement, of forgiveness and renewal. It’s our new year, a time for new beginnings. And in a moment that seems serendipitous, I feel like I’m…
If there’s anything last week’s Emmy Awards reaffirmed for me, it’s that I love Lizzo. More than her music, I adore her as a person and admire what she represents. When her show, “Lizzo’s Watch Out for the Big Grrrls,” won Outstanding Competition Program, the “About Damn Time” singer gave…
The other day, I was heading home from my intravenous immunoglobulin (IVIG) infusion, grateful to be back on schedule after my recent insurance delay. I was mindlessly singing along to whatever was playing on the radio, which turned out to be Matchbox Twenty — and I realized that…
As I type this from my living room, all I can think about is that I shouldn’t be here. I should be at the hospital getting my weekly infusion. I should be laughing with the nurses, still amazed at how much easier it’s been since I had a port-a-cath inserted…
The other day I was surprised by a knock on my door, and even more surprised to hear the response when I asked who it was. It sounded like he said Jamaal Bowman — my congressman. It even sounded like his voice, which I recognized from countless interviews,…
Get regular updates to your inbox.
