When I was in grad school, I was a teacher’s assistant for an English literature class about 14th century author…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
When it rains, it pours … but when it snows, it’s sarcoidosis. Sarcoidosis is often referred to as a…
I was recently scrolling through my Instagram feed when I saw a post from another sarcoidosis advocate that struck…
“Hang on a sec, hon,” I called to my husband in the car, at the airport, and again on the…
How are you? It’s such a common question, I’ve even learned to say it in multiple languages: Cómo estás? (Spanish), Eich…
The other day I picked up my new glasses — a pair of bifocals, because my doctor said that progressive…
“‘How does one become a butterfly?’ she asked pensively. “‘You must want to fly so much that you are willing…
As I type this, it’s the evening of Yom Kippur, the final night of the Jewish High Holy Days. It’s…
If there’s anything last week’s Emmy Awards reaffirmed for me, it’s that I love Lizzo. More than her music, I…
The other day, I was heading home from my intravenous immunoglobulin (IVIG) infusion, grateful to be back on schedule…