The other day I picked up my new glasses — a pair of bifocals, because my doctor said that progressive…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
“‘How does one become a butterfly?’ she asked pensively. “‘You must want to fly so much that you are willing…
As I type this, it’s the evening of Yom Kippur, the final night of the Jewish High Holy Days. It’s…
If there’s anything last week’s Emmy Awards reaffirmed for me, it’s that I love Lizzo. More than her music, I…
The other day, I was heading home from my intravenous immunoglobulin (IVIG) infusion, grateful to be back on schedule…
As I type this from my living room, all I can think about is that I shouldn’t be here. I…
The other day I was surprised by a knock on my door, and even more surprised to hear the response…
“I’m broke, but I’m happy I’m poor, but I’m kind I’m short, but I’m healthy, yeah!” —…
Before I was diagnosed with sarcoidosis, I’d never heard of this disease. No one I knew had heard of…
People sometimes say their cars are an extension of their personality: sporty, sexy, rugged, classy, adventurous — any of the…