As I type this from my living room, all I can think about is that I shouldn’t be here. I…
🦋 Kerry Wong
Kerry Wong lives in Westchester, NY, with her husband, the boy next door she had a crush on since she was a child. She was diagnosed with sarcoidosis in 2015, after an 8-year search for answers. Though disabled, Kerry remains active as a writer, educator, and advocate for the rare disease and chronic illness communities. Her goal is to help others living with these conditions feel seen, validated, and empowered. Kerry recently published "Kaleidoscope: Rare Disease Stories," a diverse collection of true stories told by nearly 50 rare disease warriors; she plans to expand this into an anthology series. Through her column, Kerry shares how chronic illness has led to transformation, and invites readers to float with her, “like a Buttahfly.”
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Articles by 🦋 Kerry Wong
The other day I was surprised by a knock on my door, and even more surprised to hear the response…
“I’m broke, but I’m happy I’m poor, but I’m kind I’m short, but I’m healthy, yeah!” —…
Before I was diagnosed with sarcoidosis, I’d never heard of this disease. No one I knew had heard of…
People sometimes say their cars are an extension of their personality: sporty, sexy, rugged, classy, adventurous — any of the…
I’ve joked before that “middle-aged date night” entails my husband and me scheduling our annual physicals together. First the doctor’s…
Earlier today, I scheduled appointments for my husband and me to see our primary doctor and pulmonologist. I also rescheduled…
I recently recorded my first episode as co-host of a podcast about arthritis — defining it, differentiating the various…
There seems to be a correlation between productivity and inherent value nowadays. The busier a person is at work, the…
It feels like something is missing for me this month. For the past two years, really. Before 2020, my Aprils…