An employer once asked me what was the one wish I wanted granted. Having battled sarcoidosis for years while in the workforce, the answer came easy. I asked for the option to telecommute. At the time, my wish didn’t come true. June 11 is National Work From Home…
Columns
You are where you’re supposed to be — for now. Over the past three years, I’ve been dealing with the effects of pulmonary sarcoidosis. Having suffered multiple spontaneous pneumothoraces over a two-year period, I often wonder…
I spent the first hours of April poring through television news in the U.S. Not a single mention of Sarcoidosis Awareness Month for my efforts. I did see a bus advertising it roll by in the background of a live broadcast in Philadelphia. I smiled because that’s life with a…
Sometimes in relationships flaws become too glaring to ignore, which either leads to compromise or goodbye. That is now the case in my long love affair with meat. I’ve made sacrifices over the years. My dates with the bad boys (red meat) aren’t nearly as frequent now.
I once heard an old man say that “a changed mind is a dangerous thing.” In the summer of 2017, I spent two months in the hospital due to spontaneous pneumothorax. My lungs are in pretty bad shape because…
Runny nose, sneezing, coughing, and itchy, watery eyes. Getting a breath of fresh air ain’t what it used to be. Spring allergy season is underway in the U.S. And it’s going to be a lengthy, brutal stint for those of us in the East, according to AccuWeather meteorologists. …
I felt vindicated last year when researchers reported Lyme disease could potentially trigger sarcoidosis. I’ve been trying to get physicians to see a link between the two for years. I used to expect some dramatic “aha” moment when I reported that my sarcoidosis arrived a year after my Lyme…
I’ve been managing all right while being holed up alone since mid-March. But when I see my family and can’t hug them, I break inside. My mom worries, so twice a month I drive over and wait outside. From 6 feet or more, she mothers, telling me I should have…
We’re Stronger Than We Think
Every day is a new adventure, and this pandemic certainly has been challenging. Every morning, I give thanks for seeing another day. I ask to become a better person than I was the previous day. I also give thanks for my family, and believe it or…
The Heroes of the Pandemic Era
On April 28 of last year, I had one thing on my mind and it wasn’t my sarcoidosis. I was crammed in a movie theater for “Avengers: Endgame” learning the fate of my favorite superheroes. Filling theaters in record-breaking numbers may now be a thing of the past. But, what…
Recent Posts
- At high dose, brepocitinib eases symptoms of sarcoidosis affecting skin
- Patients and healthcare providers should approach AI with caution
- New AI model predicts sudden cardiac death risk better in cardiac sarcoidosis
- FSR invests $400K in 4 early-stage sarcoidosis research projects
- The questions of menopause mirror the uncertainty of sarcoidosis
- 7 new institutions join FSR alliance to improve treatment of sarcoidosis
- Simple blood test may predict cardiac sarcoidosis outcomes
- To scoot or not to scoot: Using a mobility aid with a dynamic disability
- Mobile app for breathing meditation may reduce sarcoidosis fatigue
- New report highlights unmet needs and treatment burdens in sarcoidosis