After all of my efforts to remain germ-free I was reminded of a couple things this past week. The first is that hand soap and sanitizer don’t make me invincible. The second is that being homebound so much over the years while battling sarcoidosis has given me a “particular…
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This has been a rough week, to say the least. Last week, I lost one of my oldest aunts. She was my mother’s oldest sister and she meant a lot to me. She lived in Washington, D.C., and she let me live with her when I took a…
More than 90 percent of people with sarcoidosis have lung involvement, which makes it hard for me not to worry about the recent coronavirus outbreak. Last week, the World Health Organization declared the coronavirus that causes COVID-19 a global pandemic. We are being bombarded daily with…
Take a minute to think about what’s really important in your life. I find myself doing that more often than I used to. I often think about the things that mean the most to me like family, health, physical abilities, and friendships, but…
I began the year with good intentions. I simply wanted to invite more fun and less stress into my life. The first sign that my intentions for 2020 were going awry occurred on a work-related road trip with my husband. I awoke the first morning away with a pounding…
Whenever I see my friend Laurie’s cats or my niece Nautica’s dog sleeping I think, “I wish I could sleep like that.” Their pets can drop into a blissful snooze anywhere and under any circumstances and look so comfortable. That’s a state I yearn to achieve nightly in my quest…
My daughter always reminds me that I’m just “Dad.” At 20 years old, she believes she knows the ways of the world. No matter what advice she asks for, she always does the opposite of what I suggest and wonders why things don’t work out…
I recently saw an episode of “Family Feud” that made me nostalgic for the good old days — or what my nieces and nephews call ancient times. Contestants on the TV game show were challenged with naming outdoor childhood games from a time when cellphones, computers, and social media…
Pulmonary sarcoidosis is a sneaky character. Last week, I wasn’t feeling like myself. I was more out of breath than usual. I felt weak and could tell something wasn’t right with me. I had my son take me to the hospital, where I was admitted…
I have a rare health condition called sarcoidosis, which causes extreme fatigue, joint pain, and difficulty breathing. It can affect all of the major organs, including the lungs, heart, eyes, and skin. Sarcoidosis affects about five in 100,000 Caucasians in the U.S. For African Americans, that number jumps…
Recent Posts
- In an inaccessible world, sometimes you can’t make lemonade
- Study finds sarcoidosis may follow 2 distinct paths after diagnosis
- Global trial now underway to test oral therapy for sarcoidosis in the skin
- As I decipher ongoing liver issues, at least my treasured coffee is good for me
- Study links manual work to higher risk of sarcoidosis
- Study points to overlooked ENT problems in adults with sarcoidosis
- Foundation launches sarcoidosis research registry across 13 US sites
- Sharing the painful truth can comfort chronic illness patients
- New partnership expands insurance support for people with sarcoidosis
- A sarcoidosis lung transplant brings high hopes for long-term health