A piercing scream woke me from a sound sleep that morning. It echoed from every corner of the house. My brain struggled to identify the source of the squealing before finally realizing it was coming from me. Intense pain was all over my body. Like a bad toothache, it came…
Columns
Stumbling into the Unknown
I was thrilled to find out the television network NBC will be airing a sarcoidosis PSA this month to raise awareness about the disease, which so many fail to recognize at the onset of symptoms. I did. Night sweats — which had me waking as drenched as if I…
Since I received a diagnosis of sarcoidosis in my lungs, I have made frequent visits to my pulmonologist to monitor my condition to see if it is progressing and to assess my overall health. On…
I was an average woman in my early 30s, married with two young stepsons, working a full-time job in healthcare sales and marketing. My husband and I had recently purchased our first home. We enjoyed spending time with family and friends and led a healthy lifestyle. Then one day, I…
The thing that attracted me to a career as a journalist — the unpredictability — is precisely what I despise most about living with a chronic illness. Over my nearly 17 years battling sarcoidosis, I’ve had good and bad days, and others that have fallen somewhere in between. I…
This Too Shall Pass
Like you, I’m not the only person that has daily issues living with sarcoidosis. As I tell some friends, every day is a new adventure. That adventure may include riding an emotional roller coaster, or feeling so upbeat and motivated that I’ll venture out to the gym for a…
Obstacles Don’t Define Us
I was diagnosed with sarcoidosis not long after my mother passed away in 2003, and it was totally by accident. I was having a conversation with a pulmonologist about participating in a sleep study. During the meeting, he talked about breathing issues and other conditions related to sleep apnea,…
Recent Posts
- Cell-released proteins may predict sarcoidosis treatment response
- Registry study finds heart sarcoidosis outcomes vary by feature
- Critical conversations: Why talking about our medications is essential
- Study challenges theory of microbes as sarcoidosis cause
- FDA, developer align on protocols for trial of pulmonary sarcoidosis drug
- Large study ties sarcoidosis to risk of permanent liver scarring
- Reflecting with gratitude on what sarcoidosis has brought to my life
- Lingering heart inflammation tied to cardiac sarcoidosis relapse risk
- Study identifies three genes that may influence sarcoidosis risk
- How music can help us process chronic pain, and even provide some relief