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If you have become disabled as a result of sarcoidosis or another health condition, searching for ways to save on medical and prescription costs is often at the top of your mind. But there are numerous other discounts, ranging from travel to lodging, that you may be overlooking. Travel…

Over the last two weeks, I’ve been doing a lot of introspection. I’ve been thinking about how I came to be in this situation — living with sarcoidosis — and how I’m not going to let this illness define the rest of my life.

Finding an exercise routine to stick with can be challenging under the best of circumstances. Since my sarcoidosis diagnosis, it has become even more of a dilemma. Research shows exercise can help with an overall sense of well-being and quality of life in those with sarcoidosis. But how…

Severe chronic pain is a part of life for many of us with sarcoidosis, even with the use of pain medications. I’ve come to cope with my round-the-clock pain by accepting it as part of my “new normal” with sarcoidosis. Instead of being hellbent on trying to find…

I haven’t been feeling myself this past week. I don’t know if it’s the weather or the approach of my birthday that has me feeling slightly depressed. I’m sure the sarcoidosis has something to do with it since side effects include random feelings…

Here in the northeastern part of the United States, we enjoy four distinct seasons. Before my sarcoidosis diagnosis, I appreciated each season for different reasons. However, since sarcoidosis, things have changed. Summer was my favorite season when I was younger. Like many kids, I spent days in the sun,…

I never know when it will happen. Someone speaks to me and their words land in my ears as if they are in some foreign language or secret alien code. I stand there with a blank look as my brain races to decipher the meaning of their words. If I’m…

“At least you look good.” I often hear this statement, or something close to it. I am confident the words are sincere and said with the best of intentions. Someone who tells me I look good, despite the fact that I have sarcoidosis, is hoping to make me feel…

Physicians often see us at our worst. Remembering to be mindful of how we treat them could go a long way to help bolster their thinning ranks, which results in fewer hours. Physician turnover and the reduction of clinical hours in the United States costs an estimated $4.6 billion annually,…

My calves and ankles were thick and swollen from erythema nodosum. I was struggling with a cough and fatigue daily. We were still waiting for a formal diagnosis, and though it felt like we were getting closer, the delay was difficult to cope with. My primary care physician suggested…