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Finding an escape in football Prior to my sarcoidosis diagnosis, the National Football League (NFL) got my attention once a year when the Super Bowl aired. That only changed if my hometown team had a shot of making it to the big game; then, I would tune in for the…

Finally … some relief!  It’s been an exhausting few weeks along the East Coast. The weather has taken a toll, particularly on people like me who live with sarcoidosis and have breathing issues. Over the last…

After my diagnosis, I started looking for ways to help myself heal. Through research and conversations with healthcare providers, I learned that individuals with sarcoidosis have higher levels of inflammation than most of the population. Inflammation is the body’s natural response to infection or injury. It’s necessary for the…

If you have become disabled as a result of sarcoidosis or another health condition, searching for ways to save on medical and prescription costs is often at the top of your mind. But there are numerous other discounts, ranging from travel to lodging, that you may be overlooking. Travel…

Over the last two weeks, I’ve been doing a lot of introspection. I’ve been thinking about how I came to be in this situation — living with sarcoidosis — and how I’m not going to let this illness define the rest of my life.

Finding an exercise routine to stick with can be challenging under the best of circumstances. Since my sarcoidosis diagnosis, it has become even more of a dilemma. Research shows exercise can help with an overall sense of well-being and quality of life in those with sarcoidosis. But how…

Severe chronic pain is a part of life for many of us with sarcoidosis, even with the use of pain medications. I’ve come to cope with my round-the-clock pain by accepting it as part of my “new normal” with sarcoidosis. Instead of being hellbent on trying to find…

I haven’t been feeling myself this past week. I don’t know if it’s the weather or the approach of my birthday that has me feeling slightly depressed. I’m sure the sarcoidosis has something to do with it since side effects include random feelings…

Here in the northeastern part of the United States, we enjoy four distinct seasons. Before my sarcoidosis diagnosis, I appreciated each season for different reasons. However, since sarcoidosis, things have changed. Summer was my favorite season when I was younger. Like many kids, I spent days in the sun,…

I never know when it will happen. Someone speaks to me and their words land in my ears as if they are in some foreign language or secret alien code. I stand there with a blank look as my brain races to decipher the meaning of their words. If I’m…