“Be who you are and say what you feel, because those who mind don’t matter, and those who matter don’t mind.” — Anonymous Every other week before I meet with my therapist, I take stock of where my head is at: what I’m thinking most about, what’s stressing me…
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“Start where you are. Use what you have. Do what you can.” — tennis champion Arthur Ashe Six years ago, my life changed. That’s when I experienced my first spontaneous pneumothorax, or a sudden collapsed lung. The year before, I’d been laid off from my job. I spent that…
“Baseball is 90% mental. The other half is physical.” — New York Yankees Hall of Famer Yogi Berra It seems we’re never going to make it to a post-COVID world. It’s never going to be gone — or if it is, other variants or viruses will likely take its place.
“Life is like riding a bicycle. To keep your balance, you must keep moving.” — Albert Einstein I was diagnosed with pulmonary sarcoidosis a year after my mother passed away. That was over 20 years ago. Afterward, I didn’t give a lot of critical thought to living…
I recently saw a post on social media that stated, “I’m a person who wants to do a lot of things trapped in a body that doesn’t.” I felt this sentiment deeply; it was a perfect description of my life with sarcoidosis. I’ve always been someone who wants to…
“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure.” — Marianne Williamson, “A Return to Love” Over the past few days, the negative impact of sarcoidosis has affected my emotions. It’s not uncommon for folks with this illness to…
When I told my primary physician a few months ago that I was diagnosed with avascular necrosis (also known as AVN or osteonecrosis) and would be having a total hip replacement in early June, he offered his sympathies. I understood that inclination, but I was thrilled. I would have…
The easiest thing to do in life is nothing. For whatever reason, that seems to be a safe space for all of us. I used to tell my son this all the time. Every day I try to do something so I don’t get caught in the web of…
“People will forget what you said, people will forget what you did, but people will never forget how you made them feel.” While the origins of this quote are uncertain, it is often attributed to writer and activist Maya Angelou. But even if Angelou didn’t actually say this, she…
“Blessed are the merciful, for they will be shown mercy.” — Matthew 5:7 My issues with pulmonary sarcoidosis keep me focused on living each day as productively as possible. Some days are tolerable; other days are harder. But each day is a blessing that shouldn’t be wasted…
Recent Posts
- Kaleidoscope sparks new Sarcoidosis Awareness Month campaign
- Using our role as ‘professional patients’ to learn and pay it forward
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- A night of nostalgia proves compassion counts with chronic illness
- 2 factors linked to higher risk of death for lung sarcoidosis patients in study
- Autoimmune diseases tied to higher sarcoidosis risk, new study finds
- Atyr to discuss efzofitimod’s future with FDA after Phase 3 sarcoidosis trial
- How do you celebrate Autoimmune Awareness Month?
- New congressional caucus to advocate for sarcoidosis research, funding
- Free virtual conference aims to empower sarcoidosis community