Bracelets with messages meant just to cheer me, Wireless earbuds when anyone’s near me, Cute comfy PJs without a drawstring, These are a few of my favorite things. The holidays are upon us, and while that should be a time of joy and celebration, of love and…
Columns
Ten years ago this month, I was devastated to leave a job I loved — one I thought would be the beginning of my career, not the end of it. It was a dream job, so losing it was a nightmare. I’d practically done the job for free already. I…
It is with deep sadness that we inform the Sarcoidosis News community of the passing of our friend and gifted columnist Charlton Harris on Aug. 25, 2023, only a few days before the publication of his final column. Charlton visiting…
I was 7 years old when I saw “Poltergeist,” the 1982 film about a family that moves into a house possessed by angry spirits. While there are countless frightening moments in the film, the worst for me was when 8-year-old Robbie is attacked by his doll, a clown…
Have you ever had one of those days? You know, the kind where nothing seems to go right, where a dozen things have gone wrong before you’ve even left the house? OK, technically, I did leave my apartment, and came back, and left again, and came back again. And that…
When I learned that an upcoming episode of the “AiArthritis Voices 360 Talk Show” would focus on the difficulty patients have in getting diagnosed, I jumped at the chance to co-host. After all, it took me eight years to get my sarcoidosis diagnosis, starting from when I began…
How do I know that my hip is getting better? My back is hurting more. I know that sounds like a bad joke, but it really falls into the category of “funny ’cause it’s true.” It’s not actually funny, but laughter is a great coping mechanism. Sometimes I can’t tell…
One of my wife’s friends recently invited us to a party. It happened to be our anniversary weekend and we didn’t have any plans, so we decided to make it a date. It was a great opportunity to hang out with some nice folks. After arriving, I overheard a few…
When living with a chronic health condition, challenges often seem to appear out of nowhere. After I was diagnosed with pulmonary sarcoidosis, I continued to do anything and everything I wanted to do. I rarely considered how my health might dictate my actions and abilities. Call it…
“Be who you are and say what you feel, because those who mind don’t matter, and those who matter don’t mind.” — Anonymous Every other week before I meet with my therapist, I take stock of where my head is at: what I’m thinking most about, what’s stressing me…
Recent Posts
- Large study ties sarcoidosis to risk of permanent liver scarring
- Reflecting with gratitude on what sarcoidosis has brought to my life
- Lingering heart inflammation tied to cardiac sarcoidosis relapse risk
- Study identifies three genes that may influence sarcoidosis risk
- How music can help us process chronic pain, and even provide some relief
- Philadelphia summit to bring together sarcoidosis patients, experts
- Immune changes may help reveal disease activity in cardiac sarcoidosis
- In an inaccessible world, sometimes you can’t make lemonade
- Study finds sarcoidosis may follow 2 distinct paths after diagnosis
- Global trial now underway to test oral therapy for sarcoidosis in the skin