Columns

I was recently scrolling through my Instagram feed when I saw a post from another sarcoidosis advocate that struck me. It was a simple video showing her with the text “1974” and a caption that read, “Starting today I’m 48 years old for only 48 more days. I’m entering…

The year 2022 was one I won’t soon forget. Yes, it’s easy to say that right after it’s ended. But sometimes, you just know that a time was special, don’t you? Like much of the world, I knew that 2020 would be memorable, what with the COVID-19 pandemic starting and…

“The greatest failure in life is to stop trying.” — Napoleon Hill The past few days have been encouraging for me, even though living with sarcoidosis can make some days more challenging than others. I didn’t win the lottery, nor did I pay off my mortgage (wishful prayers), but…

In 1989, I rented my first apartment. It was in a wonderful brownstone in the same area where I grew up. My family used to shop at the Italian Market in South Philly, an area that stretches about six or seven blocks where outdoor vendors sell merchandise, such as fruits,…

“Hang on a sec, hon,” I called to my husband in the car, at the airport, and again on the plane. “I want to get a good shot. I’m sure something from this trip will work its way into my next column.” Boy, was I right — but not in…

“Who is of so little faith that in a moment of great disaster or heartbreak has not called to his God? Who has not cried out when confronted with danger, death, or mystery beyond his normal experience or comprehension? From where has this deep instinct come which escapes from the…

How are you? It’s such a common question, I’ve even learned to say it in multiple languages: Cómo estás? (Spanish), Eich at/ata? (Hebrew), Come stai? (Italian), Comment allez-vous? (French), Nǐ hǎo ma? (Chinese), Ti kanis? (Greek) — and let us not forget, “How YOU doin’?” (Joey Tribbiani, “Friends”). Ironically, when people…

I’m a marathoner! On Sunday, Nov. 6, I ran the TCS New York City Marathon, my first 26.2-mile race. And I did it with sarcoidosis-affected lungs. In the end, each mile was like a race of its own. Miles 1–2: I’m on the Verrazano-Narrows Bridge, leaving Staten…

The other day I picked up my new glasses — a pair of bifocals, because my doctor said that progressive lenses would worsen my dizziness and vertigo. The same day, I was discharged from physical therapy because my insurance company didn’t see enough progress. Since every other treatment has…

For the past few days, I’ve been feeling distant in my relationships, mostly because of an unusual series of deaths close to me. This is the 19th year since I lost my mother. It’s also been 18 years since I was diagnosed with sarcoidosis. For some reason, I’ve been…