Seeing actor Will Smith post that he was in the worst shape of his life made me smile. Because grinning in short shorts with his paunch on display, he shamelessly owned something I’ve often felt.   Getting and staying fit is tough. Sarcoidosis and other chronic illnesses don’t…

The Foundation for Sarcoidosis Research (FSR) is holding a two-day virtual patient education summit focused on providing relevant medical content on sarcoidosis, patient and care-partner perspectives, and updates on current and future research in the field. To attend the summit, set for June 12–13, patients and caregivers can…

A professor at Northwestern University has been awarded a $50,000 American Thoracic Society (ATS)/Mallinckrodt Pharmaceuticals Research Grant to study the role of immune macrophages in the development of sarcoidosis. Sarcoidosis is a complex immune disease characterized by the accumulation of immune cells such as macrophages,…

“If you’re not nervous, you’re not paying attention.” – Miles Davis Over the past few months, I’ve been documenting my visits to a new hospital, where I’m receiving a second opinion regarding my pulmonary sarcoidosis. Any treatments or therapies this team can offer would be welcome,…

I’ve often felt like I’m just along for the ride when it comes to sarcoidosis. I’d wake up wondering what it would let me do. But a change I made in late February has given me a new outlook. It happened by accident. Maybe you read my glorious account…

The last day of pulmonary rehab is upon me. Truth be told, it’s bittersweet. This will be my third time in the rehab program. A few years ago, my pulmonary nurse practitioner suggested it might be a good program for me. She explained…

aTyr Pharma, which is developing a candidate therapy for pulmonary sarcoidosis called ATYR1923, has appointed Andrea Wilson — a sarcoidosis patient and advocate who co-founded the Foundation for Sarcoidosis Research (FSR) — as a patient advisor. “We are pleased during Sarcoidosis Awareness Month to welcome Andrea, a…

“I am not what happened to me, I am what I choose to become.” — Carl Jung I was browsing the internet last week looking for stock videos to help out a friend who was producing a video package for his work. We’ve been friends for…