The Struggle to Feel Seen and Heard With Sarcoidosis
Can you hear me? Do you see me? I repeat these two phrases at least 10 times a day. I think it’s common for folks living with chronic health issues to ask people these questions. I don’t know…
Can you hear me? Do you see me? I repeat these two phrases at least 10 times a day. I think it’s common for folks living with chronic health issues to ask people these questions. I don’t know…
“Grace means that all of your mistakes now serve a purpose, instead of serving shame.” – Mike Rusch For the past few days, I’ve felt like I’m missing something — or maybe that I’m missing out on something. I keep telling myself that I have…
An association has been found between active sarcoidosis, inflammation, and the presence of low levels of white blood cells, called lymphocytes, that are involved in immune defense. This finding, by researchers at the University of Illinois Chicago (UIC), could be the first step toward the development of a new biomarker…
Envy is a terrible thing. But three months into the year, I can no longer shake it. I thought I’d be an early candidate for protection against COVID-19 because of my sarcoidosis and asthma. But I’ll be among the last eligible in Pennsylvania, which as of this writing…
At this time last year, I was in the hospital. I spent three days there, including during my son’s birthday. During that time, my primary pulmonologist broke the news to me that I didn’t qualify for a procedure I was looking to have at this…
The Foundation for Sarcoidosis Research is urging adults with sarcoidosis to participate in a new study that will investigate how lymphocytes — one of the main types of immune cells found in the body — control inflammation and if this level of control is part of the reason…
We sat just a few feet apart, trying to figure each other out. He jotted down his clues, and watching him closely, I looked for mine. Given that fewer than 200,000 Americans have sarcoidosis, which qualifies it as a rare disease in the U.S., it wasn’t a mystery he often…
Protalix Biotherapeutics and SarcoMed USA have entered into an exclusive worldwide license agreement to advance PRX-110 (alidornase alfa) as a treatment of pulmonary sarcoidosis and other respiratory diseases. “Most patients with pulmonary sarcoidosis do not show symptoms and do not realize they have the disease until it has…
Recovery for people with ocular sarcoidosis is more likely if anterior uveitis — inflammation in front of the eye — is evident at diagnosis and they are of Caucasian ethnicity, a long-term study in patients in Europe reports. But elevated intraocular pressure generally leads to poorer outcomes, its researchers wrote. They…
My physician’s index finger slid across the X-ray, briefly stopping in areas to indicate the foreign presence in my lungs. I had pulmonary sarcoidosis. And for the next 14 years, I would have regular examinations for my pulmonary health without ever knowing that my heart could be at risk,…
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