Last week, I had two doctor appointments — one to see my pulmonologist, and the other to take pulmonary function tests (PFT). As part of the PFT, I did the six-minute…

Last month, I decided to take a break from Twitter. It is the only social media site I use, despite the grumblings of Facebook-obsessed family and friends. My only regret is not doing it sooner. Ditching Twitter wasn’t as hard as I expected. When I told my 20-year-old niece about…

It was what I least felt like doing that Saturday morning: learning something new and being among a group of people. But the friend who urged me to attend a mixed media collage art class at the local library must have sensed it was exactly what I needed. Since…

Weeks after getting a script for what I hoped would be a cheaper alternative to Restasis (cyclosporine emulsion), I was reminded of why so many prescription medications are unaffordable. Three pharmaceutical companies recently agreed to pay California nearly $70 million to settle allegations that they paid to delay…

All too often, life gets in the way of living. That makes it hard to stick with your life’s plan. Like most people, I had a plan for my future. Growing up, I always knew I wanted to be in a creative field. As early as…

Before sarcoidosis hit me, I was a Pilates enthusiast and practiced yoga, too. Between classes and my practice at home, I stayed rather active with these two forms of exercise. However, like so much in life, the ability to stay active drastically changed after my diagnosis. But then an…

Twice in the past month, a charley horse in my right calf has ripped me from blissful sleep. Even though prednisone wasn’t to blame for the agonizing 4 a.m. wake-up calls, it’s the first thing I thought about while lying in bed, writhing in pain. I’ve lost count of…

Recently, I received a phone call from my former brother-in-law. He suggested that I come out to his house for a few days of rest and relaxation. He checks on me daily since I had my first spontaneous pneumothorax in August 2017. I…

Finding an escape in football Prior to my sarcoidosis diagnosis, the National Football League (NFL) got my attention once a year when the Super Bowl aired. That only changed if my hometown team had a shot of making it to the big game; then, I would tune in for the…

Finally … some relief!  It’s been an exhausting few weeks along the East Coast. The weather has taken a toll, particularly on people like me who live with sarcoidosis and have breathing issues. Over the last…