Pulmonary sarcoidosis is a sneaky character. Last week, I wasn’t feeling like myself. I was more out of breath than usual. I felt weak and could tell something wasn’t right with me. I had my son take me to the hospital, where I was admitted…
I have a rare health condition called sarcoidosis, which causes extreme fatigue, joint pain, and difficulty breathing. It can affect all of the major organs, including the lungs, heart, eyes, and skin. Sarcoidosis affects about five in 100,000 Caucasians in the U.S. For African Americans, that number jumps…
When I stumbled upon sarcoidosis in 2002, I was told it was rare for it to cause chronic health issues. What I wasn’t told was that the disease was rare. I haven’t come face to face with a single person with sarcoidosis since my diagnosis. Nor have I met…
I’ve had an unusually difficult week. To put it plainly, the events of this past week have caused me great concern. For the most part, I’d been feeling pretty good since the start of the year, and I had several medical tests. But lately,…
I often am my own worst enemy. Well, sarcoidosis is actually my worst enemy. But I’d say I’m a close second. I know I need to take good care of myself on a daily basis. I am aware I need to do whatever it takes to sleep well and stay…
When it comes to managing sarcoidosis, rain feels like another obstacle in my day. And Mother Nature has been pouring down plenty of it in the Philadelphia area lately. Give me a day or two of wet weather and it’s unpleasant, but I manage. But being stuck in a seemingly…
In 2003, I lost my mother suddenly. I still remember the day like it was yesterday. I had just returned to work after a break following an outpatient medical procedure my mom had accompanied me to. Before I left my job…
My husband is heading out on an impromptu business trip. Coincidentally, his destination is just minutes from one of our favorite vacation spots. I could easily stay home, but I’ve decided to accompany him. He’ll be training a new hire. After that, we’ll leave one of his company vehicles behind…
I know that getting outdoors is good for my health and my sarcoidosis management. But the deeper we get into winter, the more I try to avoid it. Much like when I’m battling the hottest days of summer, a nature walk for me now is whatever I see…
I see my pulmonologist every two to three months to see how I’m doing with my pulmonary sarcoidosis management and to follow up after pulmonary function tests. Before I see him, I usually get a few…
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