When I stumbled upon sarcoidosis in 2002, I was told it was rare for it to cause chronic health issues. What I wasn’t told was that the disease was rare. I haven’t come face to face with a single person with sarcoidosis since my diagnosis. Nor have I met…
Columns
I’ve had an unusually difficult week. To put it plainly, the events of this past week have caused me great concern. For the most part, I’d been feeling pretty good since the start of the year, and I had several medical tests. But lately,…
I often am my own worst enemy. Well, sarcoidosis is actually my worst enemy. But I’d say I’m a close second. I know I need to take good care of myself on a daily basis. I am aware I need to do whatever it takes to sleep well and stay…
Rainy Days Always Get Me Down
When it comes to managing sarcoidosis, rain feels like another obstacle in my day. And Mother Nature has been pouring down plenty of it in the Philadelphia area lately. Give me a day or two of wet weather and it’s unpleasant, but I manage. But being stuck in a seemingly…
In 2003, I lost my mother suddenly. I still remember the day like it was yesterday. I had just returned to work after a break following an outpatient medical procedure my mom had accompanied me to. Before I left my job…
My husband is heading out on an impromptu business trip. Coincidentally, his destination is just minutes from one of our favorite vacation spots. I could easily stay home, but I’ve decided to accompany him. He’ll be training a new hire. After that, we’ll leave one of his company vehicles behind…
I know that getting outdoors is good for my health and my sarcoidosis management. But the deeper we get into winter, the more I try to avoid it. Much like when I’m battling the hottest days of summer, a nature walk for me now is whatever I see…
I see my pulmonologist every two to three months to see how I’m doing with my pulmonary sarcoidosis management and to follow up after pulmonary function tests. Before I see him, I usually get a few…
I mentioned in a previous column my desire to embrace winter this year. As I’m writing this, it has been unseasonably warm here in the Northeast. Warmer temperatures help tremendously with my sarcoidosis symptoms, and for this, I am grateful. But I know the winter elements are still…
When I was diagnosed with sarcoidosis, my physicians drilled into me the importance of annual lung and eye exams. And I have followed through every year without fail. But numerous readers have made me aware of another important area of concern: the heart. February is American Heart Month and…
Recent Posts
- Immune changes may help reveal disease activity in cardiac sarcoidosis
- In an inaccessible world, sometimes you can’t make lemonade
- Study finds sarcoidosis may follow 2 distinct paths after diagnosis
- Global trial now underway to test oral therapy for sarcoidosis in the skin
- As I decipher ongoing liver issues, at least my treasured coffee is good for me
- Study links manual work to higher risk of sarcoidosis
- Study points to overlooked ENT problems in adults with sarcoidosis
- Foundation launches sarcoidosis research registry across 13 US sites
- Sharing the painful truth can comfort chronic illness patients
- New partnership expands insurance support for people with sarcoidosis