“I may not know where I’m going, but I’ll let you know when I get there.” I used to say that to a few of my college friends. I was always the one who knew where I wanted to go in life, even though I wasn’t sure how I’d get…
Columns
As I type this, it’s the evening of Yom Kippur, the final night of the Jewish High Holy Days. It’s a period of reflection and atonement, of forgiveness and renewal. It’s our new year, a time for new beginnings. And in a moment that seems serendipitous, I feel like I’m…
I’m training for the TCS New York City Marathon this November. It’s been quite a challenge, as I’ll be a rookie marathoner over 50 years old who has pulmonary sarcoidosis. Needless to say, I do all this with my the approval of my doctor at the…
Motivation. It begins as an inspiration that becomes an action toward a goal. That’s what they say, and I’ve listened. Every now and again, I find it hard not only to get motivated, but also to stay motivated. Many factors affect my becoming and staying motivated, and I find the…
And just like that, summer has come to an end. Folks try to hold on to it for as long as they can, but everything must change. Personally, I prefer the fall, my favorite time of year, with its cool, clean, crisp air for me to breathe and comfortable sleeping…
If there’s anything last week’s Emmy Awards reaffirmed for me, it’s that I love Lizzo. More than her music, I adore her as a person and admire what she represents. When her show, “Lizzo’s Watch Out for the Big Grrrls,” won Outstanding Competition Program, the “About Damn Time” singer gave…
Happy anniversary to me! On Sept. 24, 2014, I was diagnosed with sarcoidosis. These eight years have been quite amazing, though I previously thought the date had been closer to nine years. Regardless, when I think of where my life was at that time — in Maryland, struggling to…
“Don’t let the day get away from you!” Growing up, I remember my family members saying this to my brother and me regularly. It means that you shouldn’t let the day pass you by without doing something. That something could be anything, as long as it was constructive. It was…
The other day, I was heading home from my intravenous immunoglobulin (IVIG) infusion, grateful to be back on schedule after my recent insurance delay. I was mindlessly singing along to whatever was playing on the radio, which turned out to be Matchbox Twenty — and I realized that…
Hope. “I guess it comes down to a simple choice, really. You get busy living, or get busy dying.” Recently, I’ve found myself watching and rewatching one of my favorite movies, “The Shawshank Redemption,” starring Morgan Freeman and Tim Robbins. The movie chronicles their friendship at a fictional…
Recent Posts
- New AI model predicts sudden cardiac death risk better in cardiac sarcoidosis
- FSR invests $400K in 4 early-stage sarcoidosis research projects
- The questions of menopause mirror the uncertainty of sarcoidosis
- 7 new institutions join FSR alliance to improve treatment of sarcoidosis
- Simple blood test may predict cardiac sarcoidosis outcomes
- To scoot or not to scoot: Using a mobility aid with a dynamic disability
- Mobile app for breathing meditation may reduce sarcoidosis fatigue
- New report highlights unmet needs and treatment burdens in sarcoidosis
- Cardiac sarcoidosis symptoms at diagnosis help predict long-term risk
- Methotrexate is safer second-line sarcoidosis treatment than MMF